Pediatric Heart Network - General Contact Information

	If you have questions about pediatric heart disease, joining a clinical study or something you read on this site, feel free to contact the National Heart, Lung and Blood Institute: Victoria Pemberton, RNC, MS, CCRC Pediatric Heart Network Coordinator National Heart, Lung, and Blood Institute

	To find a participating site near you, please select from the list below:
	Belgium Ghent University Ghent, Flanders, Belgium PI: Dr. Bart Loeys Coordinator: Sylvia De Nobele Phone Number: 32-9-332.63.39 E-mail address: sylvia.denobele@ugent.be Marfan Canada Hospital For Sick Children Toronto, Ontario, Canada PI: Dr. Brian McCrindle Coordinator: Liz Radojewski, RN Phone Number: 1-866-613-7778 Email: elizabeth.radojewski@sickkids.ca SVR Extension and Marfan Toronto General Hospital - UHN Toronto, Ontario, Canada PI: Dr. Tim Bradley Coordinator: Liz Radojewski, RN Phone Number: 1-866-613-7778 Email: elizabeth.radojewski@sickkids.ca Marfan California Cedars-Sinai Medical Center Los Angeles, CA PI: Dr. David Rimoin Coordinator: Mitchel Pariani MS Phone Number: 310-423-9861 E-mail address: Mitchel.Pariani@cshs.org Marfan Children's Hospital of Los Angeles Los Angeles, CA PI: Drs. Alan Lewis and Vaughn Starnes Coordinator: Nancy Pike RN, PhD, FNP Phone Number: 323-669-4148 E-mail Address: npike@chla.usc.edu SVR Extension Heart Institute, Rady Children's Hospital - UCSD School of Medicine San Diego, CA PI: Dr. Paul Grossfeld Coordinator: Terri McLees-Palinkas MS, CCRC Phone Number: 858-966-8066 E-mail address: tmclees@rchsd.org Marfan Stanford University Stanford, CA PI: Dr. David Liang Coordinator: Elizabeth Merkel, RN Phone Number: 650-736-0644 E-mail address: merkel@stanford.edu Marfan Delaware Nemours Cardiac Center Wilmington, DE PI: Christian Pizarro, MD Coordinator: Carol Prospero Phone Number: 302-651-6686 E-mail address: cprosper@nemours.org SVR Extension Florida Congenital Heart Institute of Florida Tampa / St. Petersburg, FL PI: Drs. James Huhta and Jeffrey P. Jacobs Coordinator: Tina M. Merola, RN Phone Number: 727-542-2392 E-mail address: merolat@heartsurgery-csa.com SVR Extension Georgia Emory University Atlanta, GA PI: Dr. Kirk R. Kanter Coordinator : Christine Spainhour, RN, RRT Phone Number: 404-785-0421 E-mail address: Christine.Spainhour@choa.org SVR Extension Illinois Children's Memorial Hospital Chicago - Northwestern University Chicago, IL PI: Dr. Luciana Young Coordinator: Megan Domenico Phone Number: 773-880-8331 E-mail address: mdomenico@childrensmemorial.org Marfan Maryland National Heart, Lung, and Blood Institute Bethesda, MD Program Officer: Dr. Gail Pearson Coordinator: Victoria Pemberton, RN, MS, CCRC Phone Number: 301-435-0510 E-mail address: pembertonv@nhlbi.nih.gov Johns Hopkins University Baltimore, MD PI: Dr. Hal Dietz Coordinator: Mary Rykiel, BSN Phone Number: 410-502-2014 E-mail address: mrykiel1@jhmi.edu Marfan Massachusetts Children's Hospital Boston Boston, MA PI: Dr. Jane Newburger Coordinator: Carolyn Dunbar-Masterson, RN, BSN Phone Number: 617-355-4201 E-mail address: Carolyn.dunbar-masterson@cardio.chboston.org SVR Extension and Marfan New England Research Institutes Watertown, MA PI: Dr. Lynn Sleeper PI: Dr. Sharon Tennstedt Coordinator: Beverly Slayton Phone Number: 617-923-7747 X410 E-mail address: bslayton@neriscience.com Michigan University of Michigan Ann Arbor, MI PI: Dr. Rick Ohye Coordinator: Cheryl Nowak RN, CCRC Phone Number: 734-615-1903 E-mail address: nowakc@umich.edu SVR Extension Minnesota Children's Hospital & Clinic St. Paul, MN PI: Dr. Mary Ella Pierpont Coordinator: Erin Olson Phone Number: 612-813-7737 E-mail address: erin.olson@childrensmn.org Marfan Mayo Clinic - St. Mary's Hospital Rochester, MN PI: Dr. Heidi Connolly Coordinator: Susan Nelson Phone Number: 507-255-4670 E-mail address: nelson.susan@mayo.edu Marfan Missouri Washington University in St. Louis St. Louis, MO PI: Dr. Angela Sharkey Coordinator: Cheryl Rainey Phone Number: 314-454-6147 E-mail address: rainey_c@kids.wustl.edu Marfan New York Children's Hospital of New York New York, NY PI Name: Dr. William Hellenbrand Coordinator: Rosalind Korsin, RN Phone Number: 212-342-0524 E-mail address: rk271@columbia.edu SVR Extension and Marfan Mt. Sinai Hospital New York, NY PI: Dr. Bruce Gelb Coordinator: Tejani Mendiz-Ramdeen, MS Phone Number: 212-241-6012 E-mail address: Tejani.Mendiz-Ramdeen@mssm.edu Marfan New York Presbyterian Hospital/ Weill Cornell Medical Center New York, NY PI Name: Drs. Mary Roman and Dick Devereux Coordinator: Rosalind Korsin, RN Phone Number: 212-342-0524 E-mail address: rk271@columbia.edu Marfan North Carolina Duke University Durham, NC PI: Dr. Page Anderson Coordinator: Ming Xu, RN, MSN Phone Number: 919-668-6352 E-mail address: mingfen.xu@duke.edu SVR Extension and Marfan Eastern Carolina Univeristy Greenville, NC PI: Dr. Charlie Sang Coordinator: Lori Jo Sutton, AAS, CCRC Phone Number: 252-744-2161 E-mail address: suttonlo@ecu.edu SVR Extension and Marfan Wake Forest University Winston-Salem, NC PI: Dr. Wesley Covitz Coordinator: Kari Crawford, MS, APRN, BC, CPNP-AC Phone Number: 336-713-2228 E-mail address: kcrawfor@wfubmc.edu SVR Extension and Marfan Ohio Cincinnati Children's Hospital Cincinnati, OH PI: Dr. Woody Benson Coordinator: Teresa Barnard, RN Phone Number: 513-636-3891 E-mail address: Teresa.Barnard@cchmc.org SVR Extension and Marfan Pennsylvania Children's Hospital of Philadelphia Philadelphia, PA PI: Dr. Victoria Vetter Coordinator: Ruth E. Morgan RN, BSN Phone Number: 267-426-5270 E-mail address: Morganru@email.chop.edu SVR Extension and Marfan Children's Hospital of Pittsburgh Pittsburgh, PA PI: Dr. Steven Webber Coordinator: Kevin Stiegler RN, CRC Phone Number: 412-692-6516 E-mail address: kevin.stiegler@chp.edu Marfan University of Pennsylvania Philadelphia, PA PI: Dr. Reed Pyeritz Coordinator: Ruth E. Morgan RN, BSN Phone Number: 267-426-5270 E-mail address: Morganru@email.chop.edu Marfan South Carolina Medical University of South Carolina Charleston, SC PI: Dr. J. Philip Saul Coordinator: Teresa Atz, RN, BSN Phone: 843-792-1213 E-mail: atz@musc.edu SVR Extension and Marfan Tennessee Vanderbilt University Medical Center - Monroe Carell Jr Children's Hospital Nashville, TN PI: Dr. Larry Markham Coordinator: Cheryl Kinnard RN, CCRC Phone Number: 615-343-2880 E-mail address: cheryl.kinnard@vanderbilt.edu Marfan Texas Texas Children's Hospital Houston, TX PI: Dr. Jeff Towbin Coordinator: Hugo Martinez, MD Phone Number: 832-826-5667 E-mail address: hrmartin@bcm.edu Marfan Utah Primary Children's Medical Center Salt Lake City, Utah PI: Dr. L. LuAnn Minich Coordinator: Marian Shearrow Phone Number: 801-662-5487 E-mail address: Marian.Shearrow@intermountainmail.org Marfan Washington Children's Hospital and Regional Medical Center Division of Cardiology, Children's Heart Center Seattle, WA PI: Dr. Mark Lewin Coordinator: Amy Payne Phone Number: 206-987-5708 E-mail address: amy.payne@seattlechildrens.org Marfan Wisconsin Children's Hospital of Wisconsin Milwaukee, WI PI: Dr. Nancy Ghanayem Coordinator: Lisa Young-Borkowski, RN Phone Number: 414-266-7593 E-mail address: lyoung-borkowski@chw.org SVR Extension

Department of Health and Human Services

National Institutes of Health

National Heart, Lung, and Blood Institute