Welcome to the Pediatric Heart Network (PHN)

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For Parents

What is the Pediatric Heart Network?

Why Include Children in Research?

Should My Child Join a Study?

Rights and Responsibilities in a Study

Ensuring Safety in PHN Studies

My Child's Nutrition and Activity

Coping with a Chronic Illness

The Loss of a Child

For Healthcare Providers

What is the Pediatric Heart Network?

How Studies are Created and Monitored

Is a Clinical Study Right for your Patient?

How to Refer a Patient for a Study

For Researchers

Developing a Research Career

PHN Public Use Datasets

Relevant NHLBI Resources

Joining the PHN

Current Studies

Single Ventricle Extension

Completed Studies

Mitral Regurgitation Study (Observational)

Fontan Study (Observational)

Kawasaki Disease Study (Medication)

Single Ventricle Study (Medication)

Single Ventricle Study (Surgical)

Cardiomyopathy (VVV) Study (Observational)

Contact PHN Sites Publications

Kawasaki Disease Study (Medication)

Fontan Study (Observational)

Single Ventricle Study (Medication)

Cardiomyopathy (VVV) Study (Observational)

Single Ventricle Study (Surgical)

Helpful Resources

MARFAN Links: Parents/Patients Healthcare Providers Contact PHN Sites Brochures Partners

Marfan Brochures for Download

For Patients and Parents
Marfan Brochure for Children (English)
Marfan Brochure for Adults (English)

Marfan Brochure for Children (French)
Marfan Brochure for Adults (French)

Marfan Brochure for Children (Spanish)
Marfan Brochure for Adults (Spanish)

Marfan Brochure for Children (Dutch)
Marfan Brochure for Adults (Dutch)

For Healthcare Providers
Letter to Referring Physicians

Instructional
Holter Monitoring Instructions (English)

All brochures are in PDF format. To download the free PDF reader, click here.

Continue to Who to Contact

Contact PHN Sites

Partners

Continue to Partners

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