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For Parents
What is the Pediatric Heart Network?
Why Include Children in Research?
Should My Child Join a Study?
Rights and Responsibilities in a Study
Ensuring Safety in PHN Studies
My Child's Nutrition and Activity
Coping with a Chronic Illness
The Loss of a Child
For Healthcare Providers
What is the Pediatric Heart Network?
How Studies are Created and Monitored
Is a Clinical Study Right for your Patient?
How to Refer a Patient for a Study
Current Studies
Single Ventricle (Medication)
For Patients and Parents
For Healthcare Providers
Who to Contact
Download Brochures
Single Ventricle (Surgical)
For Patients and Parents
For Healthcare Providers
Who to Contact
Download Brochures
Single Ventricle Extension
For Patients and Parents
For Healthcare Providers
Who to Contact
Download Brochures
Marfan
For Patients and Parents
For Healthcare Providers
Who to Contact
Download Brochures
Marfan Trial Partners
Future and Completed Studies
Mitral Regurgitation (Observational)
FONTAN (Observational)
Kawasaki Disease
Cardiomyopathy (Observational)
Participating Hospitals
Publications
Helpful Resources
Marfan Brochures for Download
For Patients and Parents
Marfan Brochure for Children (English)
Marfan Brochure for Adults (English)
Marfan Brochure for Children (French)
Marfan Brochure for Adults (French)
Marfan Brochure for Children (Spanish)
Marfan Brochure for Adults (Spanish)
Marfan Brochure for Children (Dutch)
Marfan Brochure for Adults (Dutch)
For Healthcare Providers
Letter to Referring Physicians
Instructional
Holter Monitoring Instructions (English)
All brochures are in PDF format. To download the free PDF reader, click
here
.
Department of Health and Human Services
National Institutes of Health
National Heart, Lung, and Blood Institute
Department
of Health and Human Services
National
Institutes of Health
National
Heart, Lung, and Blood Institute