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For Parents
What is the Pediatric Heart Network?
Why Include Children in Research?
Should My Child Join a Study?
Rights and Responsibilities in a Study
Ensuring Safety in PHN Studies
My Child's Nutrition and Activity
Coping with a Chronic Illness
The Loss of a Child
For Healthcare Providers
What is the Pediatric Heart Network?
How Studies are Created and Monitored
Is a Clinical Study Right for your Patient?
How to Refer a Patient for a Study
For Researchers
Developing a Research Career
PHN Public Use Datasets
Relevant NHLBI Resources
Joining the PHN
Current Studies
Single Ventricle Extension
For Patients and Parents
For Healthcare Providers
Contact PHN Sites
Download Brochures
Marfan
For Patients and Parents
For Healthcare Providers
Contact PHN Sites
Download Brochures
Marfan Trial Partners
Fontan 2
For Patients and Parents
For Healthcare Providers
Contact PHN Sites
Download Brochures
Completed Studies
Mitral Regurgitation Study (Observational)
Fontan Study (Observational)
Kawasaki Disease Study (Medication)
Single Ventricle Study (Medication)
Single Ventricle Study (Surgical)
Cardiomyopathy (VVV) Study (Observational)
Contact PHN Sites
Publications
About the PHN
Kawasaki Disease Study (Medication)
Fontan Study (Observational)
Single Ventricle Study (Medication)
ACE-I in MR
Cardiomyopathy (VVV) Study (Observational)
Marfan Study
Single Ventricle Study (Surgical)
Helpful Resources
MARFAN Links:
Parents/Patients
Healthcare Providers
Contact PHN Sites
Brochures
Partners
We would like to acknowledge the generosity of the following partners who have made a significant contribution to this study:
Food and Drug Administration Grants Program, Office of Orphan Products Development
Merck & Co, Inc.
National Marfan Foundation
Brochures
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