Welcome to the Pediatric Heart Network (PHN)

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For Parents

What is the Pediatric Heart Network?

Why Include Children in Research?

Should My Child Join a Study?

Rights and Responsibilities in a Study

Ensuring Safety in PHN Studies

My Child's Nutrition and Activity

Coping with a Chronic Illness

The Loss of a Child

For Healthcare Providers

What is the Pediatric Heart Network?

How Studies are Created and Monitored

Is a Clinical Study Right for your Patient?

How to Refer a Patient for a Study

For Researchers

Developing a Research Career

PHN Public Use Datasets

Relevant NHLBI Resources

Joining the PHN

Current Studies

Single Ventricle Extension

Completed Studies

Mitral Regurgitation Study (Observational)

Fontan Study (Observational)

Kawasaki Disease Study (Medication)

Single Ventricle Study (Medication)

Single Ventricle Study (Surgical)

Cardiomyopathy (VVV) Study (Observational)

Contact PHN Sites Publications

Kawasaki Disease Study (Medication)

Fontan Study (Observational)

Single Ventricle Study (Medication)

Cardiomyopathy (VVV) Study (Observational)

Single Ventricle Study (Surgical)

Helpful Resources

MARFAN Links: Parents/Patients Healthcare Providers Contact PHN Sites Brochures Partners

The following sites participate in the Marfan Study
Roll over the interactive map for site information
For Patients and Parents

For Healthcare Providers
Brochures

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