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For Parents
What is the Pediatric Heart Network?
Why Include Children in Research?
Should My Child Join a Study?
Rights and Responsibilities in a Study
Ensuring Safety in PHN Studies
My Child's Nutrition and Activity
Coping with a Chronic Illness
The Loss of a Child
For Healthcare Providers
What is the Pediatric Heart Network?
How Studies are Created and Monitored
Is a Clinical Study Right for your Patient?
How to Refer a Patient for a Study
Current Studies
Single Ventricle Extension
For Patients and Parents
For Healthcare Providers
Contact PHN Sites
Download Brochures
Marfan
For Patients and Parents
For Healthcare Providers
Contact PHN Sites
Download Brochures
Marfan Trial Partners
Fontan 2
For Patients and Parents
For Healthcare Providers
Contact PHN Sites
Download Brochures
Completed Studies
Mitral Regurgitation (Observational)
FONTAN (Observational)
Kawasaki Disease (Medication)
Single Ventricle (Medication)
Single Ventricle (Surgical)
Cardiomyopathy (Observational)
Contact PHN Sites
Publications
Helpful Resources
The following sites participate in the Marfan Study
Roll over the interactive map for site information
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Last updated: June 24, 2010 9:24 AM
Department
of Health and Human Services 
National
Institutes of Health
National
Heart, Lung, and Blood Institute
