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Helpful Resources


For more information on congenital heart disease

MedlinePlus and Congenital Heart Disease

American Heart Association and Congenital Heart Defects

Heart Center Encyclopedia from Cincinnati Children’s Hospital

Quality of Life Issues

Your Child’s Special Needs and Nutrition

Children with Chronic Conditions

Pain and Your Baby

Pain and Your Child or Teen

Agencies and support groups for families with pediatric heart disease

The Congenital Heart Information Network


Mended Hearts

Mended Little Hearts

Kids With Heart National Association for Children’s Heart Disorders, Inc.

Cardiac Arrhythmias Research and Education Foundation

Children’s Cardiomyopathy Foundation

Kawasaki Disease Foundation

The Children’s Heart Foundation - “It’s My Heart” Handbook for Parents

Little Hearts, Inc.


crawling infant

For information on enhancing children's activity and nutrition

We Can Program

Free videos for children and teens with serious illnesses

Starbright Foundation Games and Videos

For clinical trial information

Children and Clinical Studies

Parent’s Guide to Medical Research from Boston Children’s Hospital

For information on growth and development

Healthy Start, Grow Smart on best practices in early childhood development

Center for Disease Control on Child Development

Infant (0-1 year) Development

Toddler (1-2 years) Development

Toddler (2-3 years) Development

Preschooler (3-5 years) Development

Childhood (6-8 years) Development

University of Michigan Developmental Milestones  

Adults with Congenital Heart Disease

Adult Congenital Heart Association

American Heart Association

Marfan Syndrome

NIH on Marfan Syndrome

National Marfan Foundation

Down Syndrome

National Down Syndrome Society


Alliance of Grandparents, a Support in Tragedy (AGAST)

Bereaved Parents of the USA

The Compassionate Friends

Healing Hearts of Bereaved Parents

Website Tracking

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Pediatric Heart Network Department of Health and Human Services Link National Institutes of Health Link