Variable Label (VAR)	Variable Name	Category	N(%)	N(Missing)	Mean(SD)	Median(Q1,Q3)	Range of Values	
A1. Blind_ID	BLIND_ID			250(0)	467.28(271.46)	454.00(225.00,708.00)	2.00-919.00	
								
A2. Study visit	VISIT	Study visit 9 (age 6 years)	250(100.0)					
								
A4. Subject gender	GENDER	Female	97(38.8)					
								
		Male	153(61.2)					
								
A5. Who complited the form	RELATIVES	Father	19(7.6)					
								
		Missing	1(0.4)					
								
		Mother	222(88.8)					
								
		Other primary caregiver	8(3.2)					
								
A6. Patient age (years) at instrument completion by parent or caregiver	PATIENT_AGE_INSTRUM			250(0)	6.15(0.22)	6.07(6.03,6.23)	5.51-8.07	
								
B1. Health	HEALTH	Excellent	53(21.2)					
								
		Fair	24(9.6)					
								
		Good	74(29.6)					
								
		Missing	3(1.2)					
								
		Poor	3(1.2)					
								
		Very good	93(37.2)					
								
C1a. Running	RUNNING	Missing	1(0.4)					
								
		No, not limited	95(38.0)					
								
		Yes, limited a little	55(22.0)					
								
		Yes, limited a lot	27(10.8)					
								
		Yes, limited some	72(28.8)					
								
C1b. Riding	RIDING	No, not limited	125(50.0)					
								
		Yes, limited a little	58(23.2)					
								
		Yes, limited a lot	22(8.8)					
								
		Yes, limited some	45(18.0)					
								
C1c. Get around	GETAROUND	No, not limited	185(74.0)					
								
		Yes, limited a little	31(12.4)					
								
		Yes, limited a lot	15(6.0)					
								
		Yes, limited some	19(7.6)					
								
C1d. Walking	WALKING	No, not limited	180(72.0)					
								
		Yes, limited a little	44(17.6)					
								
		Yes, limited a lot	13(5.2)					
								
		Yes, limited some	13(5.2)					
								
C1e. Bending	BENDING	No, not limited	213(85.2)					
								
		Yes, limited a little	16(6.4)					
								
		Yes, limited a lot	10(4.0)					
								
		Yes, limited some	11(4.4)					
								
C1f. Eating	EATING	No, not limited	213(85.2)					
								
		Yes, limited a little	17(6.8)					
								
		Yes, limited a lot	9(3.6)					
								
		Yes, limited some	11(4.4)					
								
D1a. Kind	EMO_KIND	No, not limited	203(81.2)					
								
		Yes, limited a little	26(10.4)					
								
		Yes, limited a lot	7(2.8)					
								
		Yes, limited some	14(5.6)					
								
D1b. Amount	EMO_AMOUNT	No, not limited	196(78.4)					
								
		Yes, limited a little	33(13.2)					
								
		Yes, limited a lot	6(2.4)					
								
		Yes, limited some	15(6.0)					
								
D1c. Performing	EMO_PERFORM	No, not limited	193(77.2)					
								
		Yes, limited a little	32(12.8)					
								
		Yes, limited a lot	8(3.2)					
								
		Yes, limited some	17(6.8)					
								
D2a. Kind	PHY_KIND	No, not limited	186(74.4)					
								
		Yes, limited a little	37(14.8)					
								
		Yes, limited a lot	11(4.4)					
								
		Yes, limited some	16(6.4)					
								
D2b. Amount	PHY_AMOUNT	No, not limited	192(76.8)					
								
		Yes, limited a little	33(13.2)					
								
		Yes, limited a lot	11(4.4)					
								
		Yes, limited some	14(5.6)					
								
E1. How much pain	PAIN_MUCH	Mild	41(16.4)					
								
		Moderate	14(5.6)					
								
		None	119(47.6)					
								
		Severe	3(1.2)					
								
		Very mild	73(29.2)					
								
E2. How often pain	PAIN_OFTEN	A few times	45(18.0)					
								
		Every/almost every day	1(0.4)					
								
		Fairly often	16(6.4)					
								
		None of the time	111(44.4)					
								
		Once or twice	73(29.2)					
								
		Very often	4(1.6)					
								
F1a. Argue	ARGUE	Almost never	71(28.4)					
								
		Fairly often	24(9.6)					
								
		Missing	2(0.8)					
								
		Never	53(21.2)					
								
		Sometimes	83(33.2)					
								
		Very often	17(6.8)					
								
F1b. Attention	ATTENTION	Almost never	65(26.0)					
								
		Fairly often	20(8.0)					
								
		Missing	1(0.4)					
								
		Never	60(24.0)					
								
		Sometimes	89(35.6)					
								
		Very often	15(6.0)					
								
F1c. Lied	LIED	Almost never	84(33.6)					
								
		Fairly often	2(0.8)					
								
		Missing	2(0.8)					
								
		Never	130(52.0)					
								
		Sometimes	31(12.4)					
								
		Very often	1(0.4)					
								
F1d. Stole	STOLE	Almost never	14(5.6)					
								
		Never	232(92.8)					
								
		Sometimes	4(1.6)					
								
F1e. Temper	TEMPER	Almost never	73(29.2)					
								
		Fairly often	20(8.0)					
								
		Missing	1(0.4)					
								
		Never	81(32.4)					
								
		Sometimes	61(24.4)					
								
		Very often	14(5.6)					
								
F2. Behavior	BEHAVIOR	Excellent	45(18.0)					
								
		Fair	21(8.4)					
								
		Good	73(29.2)					
								
		Missing	2(0.8)					
								
		Poor	2(0.8)					
								
		Very good	107(42.8)					
								
G1a. Crying	CRYING	A little of the time	128(51.2)					
								
		All of the time	3(1.2)					
								
		Missing	1(0.4)					
								
		Most of the time	8(3.2)					
								
		None of the time	66(26.4)					
								
		Some of the times	44(17.6)					
								
G1b. Lonely	LONELY	A little of the time	44(17.6)					
								
		All of the time	2(0.8)					
								
		Missing	1(0.4)					
								
		None of the time	195(78.0)					
								
		Some of the times	8(3.2)					
								
G1c. Nervous	NERVOUS	A little of the time	80(32.0)					
								
		All of the time	1(0.4)					
								
		Most of the time	3(1.2)					
								
		None of the time	137(54.8)					
								
		Some of the times	29(11.6)					
								
G1d. Upset	UPSET	A little of the time	101(40.4)					
								
		All of the time	3(1.2)					
								
		Most of the time	9(3.6)					
								
		None of the time	83(33.2)					
								
		Some of the times	54(21.6)					
								
G1e. Cheerful	CHEERFUL	A little of the time	1(0.4)					
								
		All of the time	55(22.0)					
								
		Most of the time	166(66.4)					
								
		None of the time	13(5.2)					
								
		Some of the times	15(6.0)					
								
H1a. School	SCHOOL	Missing	1(0.4)					
								
		Neither satisfied nor dissatisfied	35(14.0)					
								
		Somewhat dissatisfied	8(3.2)					
								
		Somewhat satisfied	62(24.8)					
								
		Very dissatisfied	5(2.0)					
								
		Very satisfied	139(55.6)					
								
H1b. Athletic	ATHLETIC	Neither satisfied nor dissatisfied	46(18.4)					
								
		Somewhat dissatisfied	23(9.2)					
								
		Somewhat satisfied	85(34.0)					
								
		Very dissatisfied	5(2.0)					
								
		Very satisfied	91(36.4)					
								
H1c. Friendship	FRIENDSHIP	Missing	1(0.4)					
								
		Neither satisfied nor dissatisfied	29(11.6)					
								
		Somewhat dissatisfied	9(3.6)					
								
		Somewhat satisfied	60(24.0)					
								
		Very dissatisfied	2(0.8)					
								
		Very satisfied	149(59.6)					
								
H1d. Looks	LOOKS	Neither satisfied nor dissatisfied	29(11.6)					
								
		Somewhat dissatisfied	2(0.8)					
								
		Somewhat satisfied	28(11.2)					
								
		Very dissatisfied	3(1.2)					
								
		Very satisfied	188(75.2)					
								
H1e. Family	FAMILY	Neither satisfied nor dissatisfied	14(5.6)					
								
		Somewhat dissatisfied	3(1.2)					
								
		Somewhat satisfied	44(17.6)					
								
		Very dissatisfied	3(1.2)					
								
		Very satisfied	186(74.4)					
								
H1f. Life	LIFE	Missing	2(0.8)					
								
		Neither satisfied nor dissatisfied	14(5.6)					
								
		Somewhat dissatisfied	2(0.8)					
								
		Somewhat satisfied	43(17.2)					
								
		Very dissatisfied	2(0.8)					
								
		Very satisfied	187(74.8)					
								
I1a. Healthy	HEALTHY	Definitely false	52(20.8)					
								
		Definitely true	34(13.6)					
								
		Don't know	23(9.2)					
								
		Mostly false	86(34.4)					
								
		Mostly true	55(22.0)					
								
I1b. Ill	ILL	Definitely false	146(58.4)					
								
		Definitely true	14(5.6)					
								
		Don't know	6(2.4)					
								
		Mostly false	55(22.0)					
								
		Mostly true	29(11.6)					
								
I1c. Catches	CATCHES	Definitely false	8(3.2)					
								
		Definitely true	32(12.8)					
								
		Don't know	28(11.2)					
								
		Missing	1(0.4)					
								
		Mostly false	82(32.8)					
								
		Mostly true	99(39.6)					
								
I1d. Healthy life	HEALTH_LIFE	Definitely false	14(5.6)					
								
		Definitely true	43(17.2)					
								
		Don't know	79(31.6)					
								
		Missing	1(0.4)					
								
		Mostly false	23(9.2)					
								
		Mostly true	90(36.0)					
								
I1e. Worry more	WORRY_MORE	Definitely false	6(2.4)					
								
		Definitely true	136(54.4)					
								
		Don't know	17(6.8)					
								
		Missing	1(0.4)					
								
		Mostly false	14(5.6)					
								
		Mostly true	76(30.4)					
								
I2. Health rate	HEALTH_RATE	About the same now as 1 year ago	130(52.0)					
								
		Missing	1(0.4)					
								
		Much better now than 1 year ago	53(21.2)					
								
		Much worse now than 1 year ago	3(1.2)					
								
		Somewhat better now than 1 year ago	52(20.8)					
								
		Somewhat worse now than 1 year ago	11(4.4)					
								
J1a. Physical health	HEALTH_PHYS	A little bit	75(30.0)					
								
		A lot	29(11.6)					
								
		Missing	1(0.4)					
								
		None at all	46(18.4)					
								
		Quite a bit	34(13.6)					
								
		Some	65(26.0)					
								
J1b. Well-being	WELL_BEING	A little bit	69(27.6)					
								
		A lot	27(10.8)					
								
		Missing	1(0.4)					
								
		None at all	72(28.8)					
								
		Quite a bit	34(13.6)					
								
		Some	47(18.8)					
								
J1c. Learning	LEARNING	A little bit	56(22.4)					
								
		A lot	27(10.8)					
								
		Missing	1(0.4)					
								
		None at all	82(32.8)					
								
		Quite a bit	38(15.2)					
								
		Some	46(18.4)					
								
J2a. Health	LIM_HEALTH	Missing	1(0.4)					
								
		No, not limited	164(65.6)					
								
		Yes, limited a little	49(19.6)					
								
		Yes, limited a lot	18(7.2)					
								
		Yes, limited some	18(7.2)					
								
J2b. Behavior	LIM_BEHAVIOR	Missing	1(0.4)					
								
		No, not limited	160(64.0)					
								
		Yes, limited a little	59(23.6)					
								
		Yes, limited a lot	9(3.6)					
								
		Yes, limited some	21(8.4)					
								
J2c. Learning	LIM_LEARNING	Missing	1(0.4)					
								
		No, not limited	173(69.2)					
								
		Yes, limited a little	47(18.8)					
								
		Yes, limited a lot	10(4.0)					
								
		Yes, limited some	19(7.6)					
								
J3a. Activity	LIM_ACTI	Almost never	71(28.4)					
								
		Fairly often	8(3.2)					
								
		Never	100(40.0)					
								
		Sometimes	60(24.0)					
								
		Very often	11(4.4)					
								
J3b. Interrupted	LIM_INTERRUP	Almost never	64(25.6)					
								
		Fairly often	17(6.8)					
								
		Never	127(50.8)					
								
		Sometimes	31(12.4)					
								
		Very often	11(4.4)					
								
J3c. Notice	LIM_NOTICE	Almost never	58(23.2)					
								
		Fairly often	18(7.2)					
								
		Missing	1(0.4)					
								
		Never	118(47.2)					
								
		Sometimes	42(16.8)					
								
		Very often	13(5.2)					
								
J3d. Tension	LIM_TENSION	Almost never	55(22.0)					
								
		Fairly often	14(5.6)					
								
		Missing	1(0.4)					
								
		Never	124(49.6)					
								
		Sometimes	47(18.8)					
								
		Very often	9(3.6)					
								
J3e. Arguments	LIM_ARGUMEN	Almost never	51(20.4)					
								
		Fairly often	7(2.8)					
								
		Never	139(55.6)					
								
		Sometimes	46(18.4)					
								
		Very often	7(2.8)					
								
J3f. Cancel	LIM_CANCEL	Almost never	56(22.4)					
								
		Fairly often	14(5.6)					
								
		Missing	1(0.4)					
								
		Never	127(50.8)					
								
		Sometimes	44(17.6)					
								
		Very often	8(3.2)					
								
J4. Get along	GET_ALONG	Excellent	69(27.6)					
								
		Fair	7(2.8)					
								
		Good	68(27.2)					
								
		Missing	2(0.8)					
								
		Poor	3(1.2)					
								
		Very good	101(40.4)					
								
Form Version	VER_ID	A	174(69.6)					
								
		UNKNOWN	76(30.4)