Variable Label (VAR)	Variable Name	Category	N(%)	N(Missing)	Mean(SD)	Median(Q1,Q3)	Range of Values	
A1. Blind_ID	BLIND_ID			1664(0)	458.97(270.00)	445.00(215.00,697.00)	2.00-920.00	
								
A3a. Study visit	VISIT	Study visit 5 (2 years)	364(21.9)					
								
		Study visit 6 (3 years)	346(20.8)					
								
		Study visit 7 (4 years)	337(20.3)					
								
		Study visit 8 (5 years)	327(19.7)					
								
		Study visit 9 (6 years)	290(17.4)					
								
A4. Data derived from the medical record.	MEDREC	No	182(10.9)					
								
		Yes	1482(89.1)					
								
A5. Was there an interview component?	INTERVIEWCOM	No	443(26.6)					
								
		Yes	1221(73.4)					
								
A5a. Interview, Mother	INTER_MOTHER	No	150(9.0)					
								
		Skipped	443(26.6)					
								
		Yes	1071(64.4)					
								
A5b. Interview, Father	INTER_FATHER	Missing	1(0.1)					
								
		No	1052(63.2)					
								
		Skipped	443(26.6)					
								
		Yes	168(10.1)					
								
A5c. Interview, Other	INTER_OTHER	Missing	1(0.1)					
								
		No	1163(69.9)					
								
		Skipped	443(26.6)					
								
		Yes	57(3.4)					
								
A6. Patient's age (years) at most recent interview	INTERVIEW_AGE			1221(443)	4.04(1.40)	4.02(3.01,5.10)	1.66-7.36	
								
B1. Has the patient undergone heart transplant or died?	TRANSDIED	No	1622(97.5)					
								
		Yes	42(2.5)					
								
B2. Number of cardiac catheterization interventions	CATHNO			1658(6)	0.16(0.65)	0.00(0.00,0.00)	0.00-11.00	
								
B2a. Patient age (years) at cath intervention	CATH_AGE_0			158(1506)	3.19(1.31)	3.03(2.02,4.18)	1.02-5.97	
								
B2b. Patient age (years) at cath intervention	CATH_AGE_1			58(1606)	3.06(1.26)	2.95(1.94,4.16)	1.02-5.58	
								
B2c. Patient age (years) at cath intervention	CATH_AGE_2			27(1637)	3.05(1.23)	3.07(1.88,4.18)	1.02-5.58	
								
B2d. Patient age (years) at cath intervention	CATH_AGE_3			14(1650)	2.69(1.06)	2.81(1.80,3.54)	1.05-4.19	
								
B2e. Patient age (years) at cath intervention	CATH_AGE_4			6(1658)	2.48(1.18)	2.30(1.49,3.43)	1.15-4.19	
								
B2f. Patient age (years) at cath intervention	CATH_AGE_5			2(1662)	2.29(1.61)	2.29(1.15,3.43)	1.15-3.43	
								
B2g. Patient age (years) at cath intervention	CATH_AGE_6			2(1662)	2.29(1.61)	2.29(1.15,3.43)	1.15-3.43	
								
B2h. Patient age (years) at cath intervention	CATH_AGE_7			2(1662)	2.14(1.39)	2.14(1.15,3.12)	1.15-3.12	
								
B2i. Patient age (years) at cath intervention	CATH_AGE_8			1(1663)	3.12()	3.12(3.12,3.12)	3.12-3.12	
								
B2j. Patient age (years) at cath intervention	CATH_AGE_9			1(1663)	3.12()	3.12(3.12,3.12)	3.12-3.12	
								
B2k. Patient age (years) at cath intervention	CATH_AGE_10			1(1663)	3.12()	3.12(3.12,3.12)	3.12-3.12	
								
B2aCath Intervention name	CATHNAME_0			()	()	(,)	-	
								
B2bCath Intervention name	CATHNAME_1			()	()	(,)	-	
								
B2cCath Intervention name	CATHNAME_2			()	()	(,)	-	
								
B2dCath Intervention name	CATHNAME_3			()	()	(,)	-	
								
B2eCath Intervention name	CATHNAME_4			()	()	(,)	-	
								
B2fCath Intervention name	CATHNAME_5			()	()	(,)	-	
								
B2gCath Intervention name	CATHNAME_6			()	()	(,)	-	
								
B2hCath Intervention name	CATHNAME_7			()	()	(,)	-	
								
B2iCath Intervention name	CATHNAME_8			()	()	(,)	-	
								
B2jCath Intervention name	CATHNAME_9			()	()	(,)	-	
								
B2kCath Intervention name	CATHNAME_10			()	()	(,)	-	
								
B2aCath Intervention indication	CATH7_0	AP collaterals or excessive pulmonary blood flow	27(1.6)					
								
		Cyanosis	35(2.1)					
								
		Intra-atrial reentrant tachycardia	4(0.2)					
								
		Low cardiac output	7(0.4)					
								
		Missing	1506(90.5)					
								
		Other	22(1.3)					
								
		Protein-losing enteropathy	7(0.4)					
								
		Signs of increased SVP	4(0.2)					
								
		Stenosis	50(3.0)					
								
		Ventricular tachycardia	1(0.1)					
								
B2bCath Intervention indication	CATH7_1	AP collaterals or excessive pulmonary blood flow	15(0.9)					
								
		Cyanosis	9(0.5)					
								
		High output failure	1(0.1)					
								
		Low cardiac output	1(0.1)					
								
		Missing	1606(96.5)					
								
		Other	4(0.2)					
								
		Protein-losing enteropathy	1(0.1)					
								
		Signs of increased SVP	1(0.1)					
								
		Stenosis	24(1.4)					
								
		Thrombosis	1(0.1)					
								
B2cCath Intervention indication	CATH7_2	AP collaterals or excessive pulmonary blood flow	9(0.5)					
								
		Cyanosis	8(0.5)					
								
		Low cardiac output	1(0.1)					
								
		Missing	1637(98.4)					
								
		Other	2(0.1)					
								
		Signs of increased SVP	1(0.1)					
								
		Stenosis	6(0.4)					
								
B2dCath Intervention indication	CATH7_3	AP collaterals or excessive pulmonary blood flow	6(0.4)					
								
		Cyanosis	2(0.1)					
								
		Missing	1650(99.2)					
								
		Signs of increased SVP	1(0.1)					
								
		Stenosis	5(0.3)					
								
B2eCath Intervention indication	CATH7_4	AP collaterals or excessive pulmonary blood flow	1(0.1)					
								
		Cyanosis	1(0.1)					
								
		Missing	1658(99.6)					
								
		Other	1(0.1)					
								
		Stenosis	3(0.2)					
								
B2fCath Intervention indication	CATH7_5	Missing	1662(99.9)					
								
		Stenosis	2(0.1)					
								
B2gCath Intervention indication	CATH7_6	AP collaterals or excessive pulmonary blood flow	1(0.1)					
								
		Missing	1662(99.9)					
								
		Other	1(0.1)					
								
B2hCath Intervention indication	CATH7_7	AP collaterals or excessive pulmonary blood flow	1(0.1)					
								
		Missing	1662(99.9)					
								
		Stenosis	1(0.1)					
								
B2iCath Intervention indication	CATH7_8	AP collaterals or excessive pulmonary blood flow	1(0.1)					
								
		Missing	1663(99.9)					
								
B2jCath Intervention indication	CATH7_9	AP collaterals or excessive pulmonary blood flow	1(0.1)					
								
		Missing	1663(99.9)					
								
B2kCath Intervention indication	CATH7_10	Missing	1663(99.9)					
								
		Stenosis	1(0.1)					
								
B2aSpecify other Cath Intervention	CATHOTH_0			()	()	(,)	-	
								
B2bSpecify other Cath Intervention	CATHOTH_1			()	()	(,)	-	
								
B2cSpecify other Cath Intervention	CATHOTH_2			()	()	(,)	-	
								
B2dSpecify other Cath Intervention	CATHOTH_3			()	()	(,)	-	
								
B2eSpecify other Cath Intervention	CATHOTH_4			()	()	(,)	-	
								
B2fSpecify other Cath Intervention	CATHOTH_5			()	()	(,)	-	
								
B2gSpecify other Cath Intervention	CATHOTH_6			()	()	(,)	-	
								
B2hSpecify other Cath Intervention	CATHOTH_7			()	()	(,)	-	
								
B2iSpecify other Cath Intervention	CATHOTH_8			()	()	(,)	-	
								
B2jSpecify other Cath Intervention	CATHOTH_9			()	()	(,)	-	
								
B2kSpecify other Cath Intervention	CATHOTH_10			()	()	(,)	-	
								
B2aCath Intervention Code	CATHCODE_0	F0	1(0.1)					
								
		F1.01.01	14(0.8)					
								
		F1.01.03	1(0.1)					
								
		F1.02.01	3(0.2)					
								
		F1.03	1(0.1)					
								
		F1.03.01	1(0.1)					
								
		F1.03.02.01.01	5(0.3)					
								
		F1.03.02.02.01	13(0.8)					
								
		F1.03.02.02.03	1(0.1)					
								
		F1.04.01.01	2(0.1)					
								
		F1.04.01.02	3(0.2)					
								
		F1.05	2(0.1)					
								
		F2.02	1(0.1)					
								
		F3.01	2(0.1)					
								
		F5.01	3(0.2)					
								
		F5.02	2(0.1)					
								
		F6.04	21(1.3)					
								
		F7.01.01	1(0.1)					
								
		F7.03	2(0.1)					
								
		F7.03.01	3(0.2)					
								
		F7.03.02.01.01	5(0.3)					
								
		F7.03.02.01.02	1(0.1)					
								
		F7.03.02.02.01	2(0.1)					
								
		F7.05	1(0.1)					
								
		F7.07	1(0.1)					
								
		F8.01	9(0.5)					
								
		F8.02	1(0.1)					
								
		F8.03	48(2.9)					
								
		F9	8(0.5)					
								
		Missing	1506(90.5)					
								
B2bCath Intervention Code	CATHCODE_1	F1.01	1(0.1)					
								
		F1.01.03	2(0.1)					
								
		F1.03	1(0.1)					
								
		F1.03.01	1(0.1)					
								
		F1.03.02.01	1(0.1)					
								
		F1.03.02.01.01	4(0.2)					
								
		F1.03.02.02.01	2(0.1)					
								
		F1.03.02.02.02	1(0.1)					
								
		F1.04.01.01	1(0.1)					
								
		F1.04.03	1(0.1)					
								
		F1.05	1(0.1)					
								
		F2.01	1(0.1)					
								
		F3.01	2(0.1)					
								
		F3.02	1(0.1)					
								
		F6.04	5(0.3)					
								
		F7.01.01	1(0.1)					
								
		F7.03.02.01.01	2(0.1)					
								
		F7.03.02.02.01	3(0.2)					
								
		F7.04.01.01	1(0.1)					
								
		F7.05	1(0.1)					
								
		F7.08	1(0.1)					
								
		F8.01	5(0.3)					
								
		F8.02	1(0.1)					
								
		F8.03	14(0.8)					
								
		F9	4(0.2)					
								
		Missing	1606(96.5)					
								
B2cCath Intervention Code	CATHCODE_2	F1.03.02.01.01	1(0.1)					
								
		F1.03.02.01.02	1(0.1)					
								
		F1.03.02.02.01	2(0.1)					
								
		F1.04.01.02	2(0.1)					
								
		F6.04	1(0.1)					
								
		F6.05	2(0.1)					
								
		F7.03.02.01.01	1(0.1)					
								
		F8.01	4(0.2)					
								
		F8.03	11(0.7)					
								
		F9	2(0.1)					
								
		Missing	1637(98.4)					
								
B2dCath Intervention Code	CATHCODE_3	F1.01.03	1(0.1)					
								
		F1.02.01	1(0.1)					
								
		F1.03.02.02.01	2(0.1)					
								
		F7	1(0.1)					
								
		F7.04.01.02	1(0.1)					
								
		F8.01	1(0.1)					
								
		F8.03	6(0.4)					
								
		F9	1(0.1)					
								
		Missing	1650(99.2)					
								
B2eCath Intervention Code	CATHCODE_4	F1.03.02.02.01	2(0.1)					
								
		F1.04.01.01	1(0.1)					
								
		F6.02	1(0.1)					
								
		F8.01	2(0.1)					
								
		Missing	1658(99.6)					
								
B2fCath Intervention Code	CATHCODE_5	F1.03.02.02.01	1(0.1)					
								
		F7.04.01.01	1(0.1)					
								
		Missing	1662(99.9)					
								
B2gCath Intervention Code	CATHCODE_6	F8.03	2(0.1)					
								
		Missing	1662(99.9)					
								
B2hCath Intervention Code	CATHCODE_7	F1.03.02.02.01	1(0.1)					
								
		F8.03	1(0.1)					
								
		Missing	1662(99.9)					
								
B2iCath Intervention Code	CATHCODE_8	F8.03	1(0.1)					
								
		Missing	1663(99.9)					
								
B2jCath Intervention Code	CATHCODE_9	F8.03	1(0.1)					
								
		Missing	1663(99.9)					
								
B2kCath Intervention Code	CATHCODE_10	F1.04.01.01	1(0.1)					
								
		Missing	1663(99.9)					
								
B2a. Specify other cath intervention	CATH_S_0			()	()	(,)	-	
								
B2b. Specify other cath intervention	CATH_S_1			()	()	(,)	-	
								
B2c. Specify other cath intervention	CATH_S_2			()	()	(,)	-	
								
B2d. Specify other cath intervention	CATH_S_3			()	()	(,)	-	
								
B2e. Specify other cath intervention	CATH_S_4			()	()	(,)	-	
								
B2f. Specify other cath intervention	CATH_S_5			()	()	(,)	-	
								
B3. Nmber of other surgical interventions.	SURGNO			1659(5)	0.05(0.33)	0.00(0.00,0.00)	0.00-5.00	
								
B3aSurgical code	SURGCD_0	01 Patch repair of pulmonary artery stenosis or other procedures to treat pulmonary artery stenosis	2(0.1)					
								
		02 Atrioventricular valvuloplasty or repair for regurgitation	3(0.2)					
								
		03 Atrial septectomy	4(0.2)					
								
		08 Atrio-ventricular valve replacement	1(0.1)					
								
		10 Aortic arch repair	1(0.1)					
								
		11 Pacemaker insertion*	4(0.2)					
								
		12 Revision of Fontan pathway	1(0.1)					
								
		13 Fontan Fenestration	20(1.2)					
								
		14 Extracorporeal membrane oxygenation	1(0.1)					
								
		16 Pleurodesis	2(0.1)					
								
		25 Thoracostomy tube	1(0.1)					
								
		99 Other surgical procedure	21(1.3)					
								
		Missing	1603(96.3)					
								
B3bSurgical code	SURGCD_1	02 Atrioventricular valvuloplasty or repair for regurgitation	4(0.2)					
								
		03 Atrial septectomy	1(0.1)					
								
		08 Atrio-ventricular valve replacement	1(0.1)					
								
		16 Pleurodesis	1(0.1)					
								
		18 Thoracic duct ligation	1(0.1)					
								
		25 Thoracostomy tube	2(0.1)					
								
		99 Other surgical procedure	9(0.5)					
								
		Missing	1645(98.9)					
								
B3cSurgical code	SURGCD_2	03 Atrial septectomy	2(0.1)					
								
		11 Pacemaker insertion*	1(0.1)					
								
		23 ORL surgical procedure	1(0.1)					
								
		99 Other surgical procedure	4(0.2)					
								
		Missing	1656(99.5)					
								
B3dSurgical code	SURGCD_3	04 Revision of superior vena cava connection	1(0.1)					
								
		99 Other surgical procedure	1(0.1)					
								
		Missing	1662(99.9)					
								
B3eSurgical code	SURGCD_4			1(1663)	22.00()	22.00(22.00,22.00)	22.00-22.00	
								
B3aSpecify other surgical procedure	SURGCD_S_0			()	()	(,)	-	
								
B3bSpecify other surgical procedure	SURGCD_S_1			()	()	(,)	-	
								
B3cSpecify other surgical procedure	SURGCD_S_2			()	()	(,)	-	
								
B3dSpecify other surgical procedure	SURGCD_S_3			()	()	(,)	-	
								
B3eSpecify other surgical procedure	SURGCD_S_4			()	()	(,)	-	
								
B4. Implantable electronic device placed (IED)?	IED	Missing	70(4.2)					
								
		No	1572(94.5)					
								
		Unknown	11(0.7)					
								
		Yes	11(0.7)					
								
B4a. Patient age (years)at placement	IED_AGE			11(1653)	3.59(1.20)	3.69(2.41,4.70)	1.62-5.07	
								
B4.b. Type of device	IED_TYPE	Epicardial atrial	1(0.1)					
								
		Epicardial dual chamber	10(0.6)					
								
		Skipped	1653(99.3)					
								
B4.b.1. If other, specify	IED_S			()	()	(,)	-	
								
B5. Classification Indication IED Placement	IED_CLASS	Class I	7(0.4)					
								
		Class IIa	1(0.1)					
								
		Skipped	1653(99.3)					
								
		Unknown	3(0.2)					
								
B6.a. rioIndication for IED placement:  Sinus node dysfunction	IED_SINUS	No	6(0.4)					
								
		Skipped	1653(99.3)					
								
		Yes	5(0.3)					
								
B6.b. Indication for IED placement:  Atrio-ventricular block	IED_ABLOCK	No	7(0.4)					
								
		Skipped	1653(99.3)					
								
		Yes	4(0.2)					
								
B6.c. Indication for IED placement:  Atrial tachycardia	IED_ATACHY	No	10(0.6)					
								
		Skipped	1653(99.3)					
								
		Yes	1(0.1)					
								
B6.d. Indication for IED placement:  Ventricular tachycardia	IED_VTACHY	No	10(0.6)					
								
		Skipped	1653(99.3)					
								
		Yes	1(0.1)					
								
B6.e. Indication for IED placement:  Ventricular dys-synchrony	IED_VDYSSYNC	No	11(0.7)					
								
		Skipped	1653(99.3)					
								
B6.f. Indication for IED placement:  Inducible arrhythmia	IED_INDUCARR	No	11(0.7)					
								
		Skipped	1653(99.3)					
								
B6.g. Indication for IED placement:  Unknown	IED_UNKNOWN	No	10(0.6)					
								
		Skipped	1653(99.3)					
								
		Yes	1(0.1)					
								
B6.h. Indication for IED placement:  Other	IED_OTHER	No	8(0.5)					
								
		Skipped	1653(99.3)					
								
		Yes	3(0.2)					
								
B6.h.1. Indication for IED placement:  Other, specify	IED_OTHER_S			()	()	(,)	-	
								
B7. Was a 24 hour ECG holter monitor data obtained?	ECG	Missing	70(4.2)					
								
		N/A	630(37.9)					
								
		No	951(57.2)					
								
		Yes	13(0.8)					
								
B7a. Patient age (years) at start of 24-hr ECG	ECG_AGE			13(1651)	3.18(1.04)	3.16(2.70,3.58)	1.44-5.43	
								
B8. Arrhythmia requiring medication or intervention?	ARRHYTH	Missing	1(0.1)					
								
		No	1627(97.8)					
								
		Yes	36(2.2)					
								
B8.a. Atrial tachycardia/flutter	ATRIALTACHY	No	25(1.5)					
								
		Skipped	1628(97.8)					
								
		Unknown	1(0.1)					
								
		Yes	10(0.6)					
								
B8.b. Supraventricular tachycardia	SUPRATACH	No	23(1.4)					
								
		Skipped	1628(97.8)					
								
		Unknown	1(0.1)					
								
		Yes	12(0.7)					
								
B8.c. Atrial fibrillation	ATRIFIB	No	35(2.1)					
								
		Skipped	1628(97.8)					
								
		Unknown	1(0.1)					
								
B8.d. Junctional ectopic tachycardia	JUNTACHY	No	34(2.0)					
								
		Skipped	1628(97.8)					
								
		Unknown	1(0.1)					
								
		Yes	1(0.1)					
								
B8.e. Ventricular tachycardia	VENTTACH	No	28(1.7)					
								
		Skipped	1628(97.8)					
								
		Unknown	1(0.1)					
								
		Yes	7(0.4)					
								
B8.f. Ventricular fibrillation	VENTFIB	No	31(1.9)					
								
		Skipped	1628(97.8)					
								
		Unknown	2(0.1)					
								
		Yes	3(0.2)					
								
B8.g. Bradycardia requiring therapy	BRADYCARD	No	30(1.8)					
								
		Skipped	1628(97.8)					
								
		Unknown	1(0.1)					
								
		Yes	5(0.3)					
								
B8.h. 2nd degree AV block	AVBLK2ND	No	31(1.9)					
								
		Skipped	1628(97.8)					
								
		Unknown	1(0.1)					
								
		Yes	4(0.2)					
								
B8.i. 3rd degree AV block (complete heart block)	AVBLK3RD	No	35(2.1)					
								
		Skipped	1628(97.8)					
								
		Unknown	1(0.1)					
								
B8.j. Indeterminate type	INDETERM	No	35(2.1)					
								
		Skipped	1628(97.8)					
								
		Yes	1(0.1)					
								
B8.k. Other	ARRHYOTH	No	31(1.9)					
								
		Skipped	1628(97.8)					
								
		Yes	5(0.3)					
								
B8.k.1. If other, specify	ARRHYOTH_S			()	()	(,)	-	
								
B9. Thrombosis since last contact	THROM	No	1633(98.1)					
								
		Unknown	10(0.6)					
								
		Yes	21(1.3)					
								
B9a. Patient age (years) at thrombosis diagnosis	THROM_AGE			21(1643)	3.54(1.31)	3.49(2.54,4.54)	1.11-5.63	
								
B9.b. Number of locations	THROMLONO			21(1643)	1.14(0.48)	1.00(1.00,1.00)	1.00-3.00	
								
B9ca. Location of thrombosis	THROMLO_0	01 Inferior vena cava (IVC)	3(0.2)					
								
		04 Left Atrium (LA)	1(0.1)					
								
		05 Extracardiac conduit (ECC)	1(0.1)					
								
		07 Pulmonary artery (PA) right	1(0.1)					
								
		08 Pulmonary artery (PA) left	1(0.1)					
								
		14 Left subclavian vein (Vein LSC)	1(0.1)					
								
		18 Left ventricle (LV)	2(0.1)					
								
		19 Aortic valve (AoV)	1(0.1)					
								
		20 Aorta (Ao)	2(0.1)					
								
		99 Other	8(0.5)					
								
		Missing	1643(98.7)					
								
B9cb. Location of thrombosis	THROMLO_1	02 Lateral Tunnel (Lat Tun)	1(0.1)					
								
		99 Other	1(0.1)					
								
		Missing	1662(99.9)					
								
B9cc. Location of thrombosis	THROMLO_2	99 Other	1(0.1)					
								
		Missing	1663(99.9)					
								
B9cia. Specify other location of thrombosis	THROMLO_S_0			()	()	(,)	-	
								
B9cib. Specify other location of thrombosis	THROMLO_S_1			()	()	(,)	-	
								
B9cic. Specify other location of thrombosis	THROMLO_S_2			()	()	(,)	-	
								
B9.d.1. Method of diagnosis-TEE	DIAG_TEE	No	18(1.1)					
								
		Skipped	1643(98.7)					
								
		Unknown	2(0.1)					
								
		Yes	1(0.1)					
								
B9.d.2. Method of diagnosis-TTE	DIAG_TTE	No	14(0.8)					
								
		Skipped	1643(98.7)					
								
		Unknown	2(0.1)					
								
		Yes	5(0.3)					
								
B9.d.3. Method of diagnosis-MRI	DIAG_MRI	No	16(1.0)					
								
		Skipped	1643(98.7)					
								
		Unknown	2(0.1)					
								
		Yes	3(0.2)					
								
B9.d.4. Method of diagnosis-Cath	DIAG_CATH	No	17(1.0)					
								
		Skipped	1643(98.7)					
								
		Unknown	2(0.1)					
								
		Yes	2(0.1)					
								
B9.d.5. Method of diagnosis-Clinical	DIAG_CLI	No	16(1.0)					
								
		Skipped	1643(98.7)					
								
		Unknown	2(0.1)					
								
		Yes	3(0.2)					
								
B10. Stroke since last contact	STROKE	No	1643(98.7)					
								
		Unknown	11(0.7)					
								
		Yes	10(0.6)					
								
B10a. Patient age (years) at first stroke	STROKE_AGE			9(1655)	3.09(1.06)	3.57(2.08,3.62)	1.60-4.41	
								
B11. Seizure since last contact	SEIZURE	No	1610(96.8)					
								
		Unknown	13(0.8)					
								
		Yes	41(2.5)					
								
B11a. Patient age (years) at first seizure	SEIZURE_AGE			39(1625)	3.43(1.51)	3.36(2.08,4.94)	1.14-5.99	
								
B11.b. Does the patient have a chronic seizure disorder?	SEIDISORDER	No	17(1.0)					
								
		Skipped	1623(97.5)					
								
		Unknown	1(0.1)					
								
		Yes	23(1.4)					
								
B12. Protein-losing enteropathy diagnosis since last contact.	PROTEIN	No	1637(98.4)					
								
		Unknown	10(0.6)					
								
		Yes	17(1.0)					
								
B12a. Patient age (years) at PLE diagnosis	PROTEIN_AGE			17(1647)	3.66(1.13)	3.56(2.80,4.36)	1.70-5.66	
								
B12.b.1. Hypoalbuminemia	FIND_HYPO	No	2(0.1)					
								
		Skipped	1647(99.0)					
								
		Unknown	2(0.1)					
								
		Yes	13(0.8)					
								
B12.b.2. Ascites	FIND_ASCITES	No	6(0.4)					
								
		Skipped	1647(99.0)					
								
		Unknown	4(0.2)					
								
		Yes	7(0.4)					
								
B12.b.3. Edema	FIND_EDEMA	No	1(0.1)					
								
		Skipped	1647(99.0)					
								
		Unknown	2(0.1)					
								
		Yes	14(0.8)					
								
B12.b.4. Elevated stool a-1 antitrypsin	FIND_STOOL	No	2(0.1)					
								
		Skipped	1647(99.0)					
								
		Unknown	7(0.4)					
								
		Yes	8(0.5)					
								
B13. Cirrhosis diagnosis since last contact	CIRRHOSIS_DX	Missing	70(4.2)					
								
		No	1584(95.2)					
								
		Unknown	10(0.6)					
								
B13a. Patient age (years) at cirrhosis diagnosis	CIRRH_DX_AGE							
								
B14. Plastic Bronchitis diagnosis since last contact	BRONCH_DX	Missing	70(4.2)					
								
		No	1581(95.0)					
								
		Unknown	10(0.6)					
								
		Yes	3(0.2)					
								
B14a. Patient age (years) at plastic bronchitis	BRONCH_DX_AGE			3(1661)	3.74(1.99)	3.84(1.70,5.68)	1.70-5.68	
								
B15. Number of other complications	COMPLINO			1656(8)	0.40(1.12)	0.00(0.00,0.00)	0.00-14.00	
								
B15a. Patient age (years) at complication	COMPLI_AGE_0			330(1334)	3.24(1.39)	3.19(1.98,4.34)	1.01-6.12	
								
B15b. Patient age (years) at complication	COMPLI_AGE_1			131(1533)	3.21(1.37)	3.23(2.08,4.12)	1.00-5.97	
								
B15c. Patient age (years) at complication	COMPLI_AGE_2			68(1596)	3.11(1.40)	3.20(1.90,4.09)	1.05-5.99	
								
B15d. Patient age (years) at complication	COMPLI_AGE_3			41(1623)	3.12(1.44)	2.92(1.97,3.98)	1.08-5.96	
								
B15e. Patient age (years) at complication	COMPLI_AGE_4			26(1638)	3.53(1.38)	3.53(2.53,4.71)	1.13-5.88	
								
B15f. Patient age (years) at complication	COMPLI_AGE_5			13(1651)	3.27(1.36)	3.60(2.48,3.84)	1.09-5.72	
								
B15g. Patient age (years) at complication	COMPLI_AGE_6			10(1654)	3.41(1.57)	3.57(2.50,4.72)	1.07-5.82	
								
B15h. Patient age (years) at complication	COMPLI_AGE_7			7(1657)	3.55(1.50)	3.37(2.78,4.72)	1.07-5.82	
								
B15i. Patient age (years) at complication	COMPLI_AGE_8			4(1660)	3.69(0.77)	3.47(3.10,4.28)	3.09-4.72	
								
B15j. Patient age (years) at complication	COMPLI_AGE_9			4(1660)	3.69(0.77)	3.47(3.10,4.28)	3.09-4.72	
								
B15k. Patient age (years) at complication	COMPLI_AGE_10			4(1660)	3.66(0.80)	3.45(3.04,4.28)	3.01-4.72	
								
B15l. Patient age (years) at complication	COMPLI_AGE_11			1(1663)	4.72()	4.72(4.72,4.72)	4.72-4.72	
								
B15m. Patient age (years) at complication	COMPLI_AGE_12			1(1663)	4.78()	4.78(4.78,4.78)	4.78-4.78	
								
B15n. Patient age (years) at complication	COMPLI_AGE_13			1(1663)	4.73()	4.73(4.73,4.73)	4.73-4.73	
								
B15aComplication Code	COMPLICD_0	M0002	1(0.1)					
								
		M0003	5(0.3)					
								
		M0006	2(0.1)					
								
		M0007	1(0.1)					
								
		M0008	1(0.1)					
								
		M0030	1(0.1)					
								
		M0031	3(0.2)					
								
		M0032	13(0.8)					
								
		M0034	1(0.1)					
								
		M0099	8(0.5)					
								
		M0102	5(0.3)					
								
		M0105	1(0.1)					
								
		M0106	17(1.0)					
								
		M0109	2(0.1)					
								
		M0110	1(0.1)					
								
		M0111	9(0.5)					
								
		M0112	6(0.4)					
								
		M0113	2(0.1)					
								
		M0115	1(0.1)					
								
		M0199	18(1.1)					
								
		M0206	3(0.2)					
								
		M0207	1(0.1)					
								
		M0209	1(0.1)					
								
		M0210	2(0.1)					
								
		M0299	3(0.2)					
								
		M0307	4(0.2)					
								
		M0310	11(0.7)					
								
		M0399	27(1.6)					
								
		M0401	1(0.1)					
								
		M0404	1(0.1)					
								
		M0405	1(0.1)					
								
		M0407	5(0.3)					
								
		M0408	3(0.2)					
								
		M0409	1(0.1)					
								
		M0410	11(0.7)					
								
		M0411	43(2.6)					
								
		M0413	2(0.1)					
								
		M0414	16(1.0)					
								
		M0499	52(3.1)					
								
		M0501	1(0.1)					
								
		M0599	1(0.1)					
								
		M0601	2(0.1)					
								
		M0603	2(0.1)					
								
		M0699	3(0.2)					
								
		M0799	2(0.1)					
								
		M0999	1(0.1)					
								
		M9999	46(2.8)					
								
		Missing	1320(79.3)					
								
B15bComplication Code	COMPLICD_1	M0006	1(0.1)					
								
		M0007	1(0.1)					
								
		M0021	2(0.1)					
								
		M0030	1(0.1)					
								
		M0034	3(0.2)					
								
		M0099	5(0.3)					
								
		M0102	4(0.2)					
								
		M0104	1(0.1)					
								
		M0106	7(0.4)					
								
		M0111	4(0.2)					
								
		M0112	3(0.2)					
								
		M0115	1(0.1)					
								
		M0199	8(0.5)					
								
		M0210	1(0.1)					
								
		M0310	5(0.3)					
								
		M0399	12(0.7)					
								
		M0402	1(0.1)					
								
		M0404	1(0.1)					
								
		M0405	2(0.1)					
								
		M0407	1(0.1)					
								
		M0409	1(0.1)					
								
		M0410	8(0.5)					
								
		M0411	11(0.7)					
								
		M0413	2(0.1)					
								
		M0414	3(0.2)					
								
		M0499	20(1.2)					
								
		M0502	1(0.1)					
								
		M0601	2(0.1)					
								
		M0602	1(0.1)					
								
		M0603	1(0.1)					
								
		M0699	1(0.1)					
								
		M0799	1(0.1)					
								
		M9999	19(1.1)					
								
		Missing	1529(91.9)					
								
B15cComplication Code	COMPLICD_2	M0007	1(0.1)					
								
		M0030	1(0.1)					
								
		M0034	1(0.1)					
								
		M0099	3(0.2)					
								
		M0102	1(0.1)					
								
		M0106	1(0.1)					
								
		M0111	2(0.1)					
								
		M0115	2(0.1)					
								
		M0199	3(0.2)					
								
		M0206	2(0.1)					
								
		M0299	2(0.1)					
								
		M0310	3(0.2)					
								
		M0399	5(0.3)					
								
		M0404	1(0.1)					
								
		M0408	3(0.2)					
								
		M0410	2(0.1)					
								
		M0411	6(0.4)					
								
		M0413	1(0.1)					
								
		M0414	1(0.1)					
								
		M0499	13(0.8)					
								
		M0501	1(0.1)					
								
		M0602	1(0.1)					
								
		M0699	1(0.1)					
								
		M0799	1(0.1)					
								
		M0999	1(0.1)					
								
		M1002	1(0.1)					
								
		M9999	10(0.6)					
								
		Missing	1594(95.8)					
								
B15dComplication Code	COMPLICD_3	M0099	1(0.1)					
								
		M0105	1(0.1)					
								
		M0106	1(0.1)					
								
		M0111	1(0.1)					
								
		M0199	6(0.4)					
								
		M0206	1(0.1)					
								
		M0399	5(0.3)					
								
		M0402	1(0.1)					
								
		M0405	2(0.1)					
								
		M0410	3(0.2)					
								
		M0411	3(0.2)					
								
		M0412	1(0.1)					
								
		M0414	2(0.1)					
								
		M0499	8(0.5)					
								
		M0501	1(0.1)					
								
		M0599	1(0.1)					
								
		M0799	1(0.1)					
								
		M9999	3(0.2)					
								
		Missing	1622(97.5)					
								
B15eComplication Code	COMPLICD_4	M0099	1(0.1)					
								
		M0106	2(0.1)					
								
		M0110	1(0.1)					
								
		M0111	1(0.1)					
								
		M0112	1(0.1)					
								
		M0115	1(0.1)					
								
		M0199	2(0.1)					
								
		M0206	1(0.1)					
								
		M0304	1(0.1)					
								
		M0310	1(0.1)					
								
		M0399	2(0.1)					
								
		M0409	1(0.1)					
								
		M0411	1(0.1)					
								
		M0414	1(0.1)					
								
		M0499	1(0.1)					
								
		M0601	1(0.1)					
								
		M0602	1(0.1)					
								
		M0699	1(0.1)					
								
		M9999	5(0.3)					
								
		Missing	1638(98.4)					
								
B15fComplication Code	COMPLICD_5	M0007	1(0.1)					
								
		M0031	1(0.1)					
								
		M0099	1(0.1)					
								
		M0106	1(0.1)					
								
		M0110	1(0.1)					
								
		M0199	1(0.1)					
								
		M0210	1(0.1)					
								
		M0399	1(0.1)					
								
		M0408	1(0.1)					
								
		M0499	3(0.2)					
								
		M0602	1(0.1)					
								
		Missing	1651(99.2)					
								
B15gComplication Code	COMPLICD_6	M0033	1(0.1)					
								
		M0099	1(0.1)					
								
		M0105	1(0.1)					
								
		M0106	1(0.1)					
								
		M0199	2(0.1)					
								
		M0399	2(0.1)					
								
		M0408	1(0.1)					
								
		M0410	1(0.1)					
								
		M0699	1(0.1)					
								
		Missing	1653(99.3)					
								
B15hComplication Code	COMPLICD_7	M0030	1(0.1)					
								
		M0099	1(0.1)					
								
		M0106	1(0.1)					
								
		M0199	1(0.1)					
								
		M0310	1(0.1)					
								
		M0499	1(0.1)					
								
		M9999	1(0.1)					
								
		Missing	1657(99.6)					
								
B15iComplication Code	COMPLICD_8	M0199	1(0.1)					
								
		M0499	1(0.1)					
								
		M0602	1(0.1)					
								
		M9999	1(0.1)					
								
		Missing	1660(99.8)					
								
B15jComplication Code	COMPLICD_9	M0199	2(0.1)					
								
		M0499	1(0.1)					
								
		M0699	1(0.1)					
								
		Missing	1660(99.8)					
								
B15kComplication Code	COMPLICD_10	M0303	1(0.1)					
								
		M0399	1(0.1)					
								
		M0499	1(0.1)					
								
		M0699	1(0.1)					
								
		Missing	1660(99.8)					
								
B15lComplication Code	COMPLICD_11	M0099	1(0.1)					
								
		M0409	1(0.1)					
								
		Missing	1662(99.9)					
								
B15mComplication Code	COMPLICD_12	M0404	1(0.1)					
								
		Missing	1663(99.9)					
								
B15nComplication Code	COMPLICD_13	M0603	1(0.1)					
								
		Missing	1663(99.9)					
								
B15aComplication Name	COMPLINAME_0			()	()	(,)	-	
								
B15bComplication Name	COMPLINAME_1			()	()	(,)	-	
								
B15cComplication Name	COMPLINAME_2			()	()	(,)	-	
								
B15dComplication Name	COMPLINAME_3			()	()	(,)	-	
								
B15eComplication Name	COMPLINAME_4			()	()	(,)	-	
								
B15fComplication Name	COMPLINAME_5			()	()	(,)	-	
								
B15gComplication Name	COMPLINAME_6			()	()	(,)	-	
								
B15hComplication Name	COMPLINAME_7			()	()	(,)	-	
								
B15iComplication Name	COMPLINAME_8			()	()	(,)	-	
								
B15jComplication Name	COMPLINAME_9			()	()	(,)	-	
								
B15kComplication Name	COMPLINAME_10			()	()	(,)	-	
								
B15lComplication Name	COMPLINAME_11			()	()	(,)	-	
								
B15mComplication Name	COMPLINAME_12			()	()	(,)	-	
								
B15nComplication Name	COMPLINAME_13			()	()	(,)	-	
								
B16. Genetic syndroms	GENETICS	Missing	1008(60.6)					
								
		No	648(38.9)					
								
		Suspected	1(0.1)					
								
		Unknown	4(0.2)					
								
		Yes	3(0.2)					
								
B16a. Code	GEN_CODE	12. Turner Syndrome	1(0.1)					
								
		99. Other, identifiable	2(0.1)					
								
		Missing	1660(99.8)					
								
		Skipped	1(0.1)					
								
B16a1. Specify	GEN_CODE_OTH			()	()	(,)	-	
								
C1. Medications receiving	MEDRECEIVE			1650(14)	3.62(2.91)	3.00(2.00,5.00)	0.00-49.00	
								
C1aMedication code	MEDCOD_0	02.02	4(0.2)					
								
		02.08	3(0.2)					
								
		02.14	1(0.1)					
								
		03.17	1(0.1)					
								
		03.20	1(0.1)					
								
		03.36	3(0.2)					
								
		04.02	2(0.1)					
								
		04.99	5(0.3)					
								
		06.01	2(0.1)					
								
		06.22	9(0.5)					
								
		06.99	2(0.1)					
								
		07.02	605(36.4)					
								
		07.04	8(0.5)					
								
		07.06	7(0.4)					
								
		07.12	31(1.9)					
								
		08.03	1(0.1)					
								
		08.09	12(0.7)					
								
		09.04	1(0.1)					
								
		09.08	4(0.2)					
								
		10.01	12(0.7)					
								
		10.05	4(0.2)					
								
		11.00	1(0.1)					
								
		11.08	1(0.1)					
								
		11.99	1(0.1)					
								
		13.01	1(0.1)					
								
		13.02	70(4.2)					
								
		13.04	309(18.6)					
								
		13.05	1(0.1)					
								
		13.07	16(1.0)					
								
		14.02	1(0.1)					
								
		14.04	1(0.1)					
								
		14.05	4(0.2)					
								
		14.08	184(11.1)					
								
		14.13	18(1.1)					
								
		14.99	4(0.2)					
								
		15.00	1(0.1)					
								
		15.02	1(0.1)					
								
		16.03	5(0.3)					
								
		16.06	7(0.4)					
								
		16.08	1(0.1)					
								
		16.09	2(0.1)					
								
		16.10	12(0.7)					
								
		16.99	3(0.2)					
								
		17.01	1(0.1)					
								
		17.02	113(6.8)					
								
		18.08	1(0.1)					
								
		18.99	2(0.1)					
								
		19.07	1(0.1)					
								
		22.01	4(0.2)					
								
		22.05	1(0.1)					
								
		22.07	1(0.1)					
								
		23.99	1(0.1)					
								
		25.04	1(0.1)					
								
		25.05	2(0.1)					
								
		99.99	9(0.5)					
								
		Missing	165(9.9)					
								
C1bMedication code	MEDCOD_1	02.02	2(0.1)					
								
		03.02	1(0.1)					
								
		03.04	1(0.1)					
								
		03.06	1(0.1)					
								
		03.17	2(0.1)					
								
		03.19	1(0.1)					
								
		03.99	2(0.1)					
								
		04.02	2(0.1)					
								
		04.99	6(0.4)					
								
		06.01	1(0.1)					
								
		06.22	12(0.7)					
								
		06.99	2(0.1)					
								
		07.02	291(17.5)					
								
		07.04	3(0.2)					
								
		07.05	1(0.1)					
								
		07.06	3(0.2)					
								
		07.12	32(1.9)					
								
		07.99	2(0.1)					
								
		08.03	2(0.1)					
								
		08.09	15(0.9)					
								
		08.20	4(0.2)					
								
		09.08	14(0.8)					
								
		09.99	2(0.1)					
								
		10.00	1(0.1)					
								
		10.01	7(0.4)					
								
		10.05	4(0.2)					
								
		10.99	3(0.2)					
								
		11.04	1(0.1)					
								
		11.08	2(0.1)					
								
		13.02	79(4.7)					
								
		13.04	357(21.5)					
								
		13.05	3(0.2)					
								
		13.06	1(0.1)					
								
		13.07	22(1.3)					
								
		14.05	16(1.0)					
								
		14.08	194(11.7)					
								
		14.09	2(0.1)					
								
		14.11	2(0.1)					
								
		14.13	48(2.9)					
								
		14.99	5(0.3)					
								
		15.99	2(0.1)					
								
		16.01	2(0.1)					
								
		16.03	5(0.3)					
								
		16.06	29(1.7)					
								
		16.07	1(0.1)					
								
		16.08	1(0.1)					
								
		16.09	9(0.5)					
								
		16.10	26(1.6)					
								
		16.99	12(0.7)					
								
		17.02	71(4.3)					
								
		18.00	1(0.1)					
								
		18.08	1(0.1)					
								
		18.99	5(0.3)					
								
		22.01	1(0.1)					
								
		22.02	2(0.1)					
								
		22.05	3(0.2)					
								
		22.15	1(0.1)					
								
		23.01	2(0.1)					
								
		25.04	2(0.1)					
								
		25.05	3(0.2)					
								
		99.99	9(0.5)					
								
		Missing	327(19.7)					
								
C1cMedication code	MEDCOD_2	02.02	1(0.1)					
								
		02.08	1(0.1)					
								
		03.04	1(0.1)					
								
		03.08	2(0.1)					
								
		03.16	1(0.1)					
								
		03.17	1(0.1)					
								
		03.36	1(0.1)					
								
		03.99	3(0.2)					
								
		04.02	2(0.1)					
								
		04.99	14(0.8)					
								
		06.00	1(0.1)					
								
		06.01	2(0.1)					
								
		06.22	7(0.4)					
								
		06.99	2(0.1)					
								
		07.02	197(11.8)					
								
		07.04	5(0.3)					
								
		07.05	2(0.1)					
								
		07.06	1(0.1)					
								
		07.12	54(3.2)					
								
		08.03	3(0.2)					
								
		08.09	7(0.4)					
								
		08.13	1(0.1)					
								
		08.14	1(0.1)					
								
		08.20	4(0.2)					
								
		09.04	2(0.1)					
								
		09.08	18(1.1)					
								
		09.99	4(0.2)					
								
		10.01	13(0.8)					
								
		10.03	1(0.1)					
								
		10.05	2(0.1)					
								
		10.99	7(0.4)					
								
		11.02	1(0.1)					
								
		13.02	26(1.6)					
								
		13.04	115(6.9)					
								
		13.07	7(0.4)					
								
		14.05	18(1.1)					
								
		14.08	160(9.6)					
								
		14.09	1(0.1)					
								
		14.11	2(0.1)					
								
		14.13	46(2.8)					
								
		14.99	6(0.4)					
								
		15.02	1(0.1)					
								
		15.04	3(0.2)					
								
		15.99	3(0.2)					
								
		16.00	2(0.1)					
								
		16.03	11(0.7)					
								
		16.05	1(0.1)					
								
		16.06	28(1.7)					
								
		16.07	1(0.1)					
								
		16.09	15(0.9)					
								
		16.10	33(2.0)					
								
		16.99	15(0.9)					
								
		17.01	1(0.1)					
								
		17.02	72(4.3)					
								
		18.06	1(0.1)					
								
		18.08	4(0.2)					
								
		18.99	5(0.3)					
								
		19.03	1(0.1)					
								
		21.99	1(0.1)					
								
		22.06	1(0.1)					
								
		22.18	1(0.1)					
								
		24.99	1(0.1)					
								
		25.01	1(0.1)					
								
		25.03	2(0.1)					
								
		25.04	1(0.1)					
								
		25.05	2(0.1)					
								
		25.99	2(0.1)					
								
		99.99	19(1.1)					
								
		Missing	693(41.6)					
								
C1dMedication code	MEDCOD_3	02.02	2(0.1)					
								
		02.08	2(0.1)					
								
		03.08	1(0.1)					
								
		03.17	1(0.1)					
								
		03.20	1(0.1)					
								
		03.28	1(0.1)					
								
		03.99	3(0.2)					
								
		04.02	2(0.1)					
								
		04.99	5(0.3)					
								
		05.01	1(0.1)					
								
		06.01	3(0.2)					
								
		06.22	17(1.0)					
								
		07.02	105(6.3)					
								
		07.04	4(0.2)					
								
		07.06	4(0.2)					
								
		07.08	1(0.1)					
								
		07.12	31(1.9)					
								
		08.03	1(0.1)					
								
		08.04	1(0.1)					
								
		08.09	12(0.7)					
								
		08.20	1(0.1)					
								
		09.07	1(0.1)					
								
		09.08	18(1.1)					
								
		09.99	2(0.1)					
								
		10.00	1(0.1)					
								
		10.01	16(1.0)					
								
		10.03	1(0.1)					
								
		10.05	6(0.4)					
								
		10.06	1(0.1)					
								
		10.99	3(0.2)					
								
		13.02	10(0.6)					
								
		13.04	41(2.5)					
								
		13.05	1(0.1)					
								
		13.07	7(0.4)					
								
		14.03	1(0.1)					
								
		14.05	11(0.7)					
								
		14.08	73(4.4)					
								
		14.11	3(0.2)					
								
		14.13	49(2.9)					
								
		14.99	5(0.3)					
								
		15.00	1(0.1)					
								
		15.01	1(0.1)					
								
		15.04	1(0.1)					
								
		15.99	3(0.2)					
								
		16.01	1(0.1)					
								
		16.03	13(0.8)					
								
		16.05	1(0.1)					
								
		16.06	17(1.0)					
								
		16.08	1(0.1)					
								
		16.09	10(0.6)					
								
		16.10	26(1.6)					
								
		16.99	19(1.1)					
								
		17.02	27(1.6)					
								
		18.05	1(0.1)					
								
		18.08	4(0.2)					
								
		18.10	1(0.1)					
								
		18.99	8(0.5)					
								
		21.99	1(0.1)					
								
		22.06	3(0.2)					
								
		25.03	4(0.2)					
								
		25.04	6(0.4)					
								
		25.05	3(0.2)					
								
		25.99	1(0.1)					
								
		99.99	25(1.5)					
								
		Missing	1037(62.3)					
								
C1eMedication code	MEDCOD_4	02.02	1(0.1)					
								
		02.14	1(0.1)					
								
		03.20	3(0.2)					
								
		03.22	1(0.1)					
								
		03.36	2(0.1)					
								
		03.99	1(0.1)					
								
		04.02	1(0.1)					
								
		04.99	3(0.2)					
								
		06.01	5(0.3)					
								
		06.22	10(0.6)					
								
		06.99	1(0.1)					
								
		07.02	35(2.1)					
								
		07.04	5(0.3)					
								
		07.05	1(0.1)					
								
		07.06	4(0.2)					
								
		07.12	18(1.1)					
								
		08.03	2(0.1)					
								
		08.09	12(0.7)					
								
		09.08	11(0.7)					
								
		09.99	4(0.2)					
								
		10.00	1(0.1)					
								
		10.01	10(0.6)					
								
		10.03	2(0.1)					
								
		10.05	7(0.4)					
								
		10.06	1(0.1)					
								
		10.99	6(0.4)					
								
		11.02	1(0.1)					
								
		11.04	1(0.1)					
								
		13.02	6(0.4)					
								
		13.04	15(0.9)					
								
		13.07	2(0.1)					
								
		14.05	6(0.4)					
								
		14.08	27(1.6)					
								
		14.09	1(0.1)					
								
		14.13	26(1.6)					
								
		14.99	3(0.2)					
								
		15.03	1(0.1)					
								
		15.04	3(0.2)					
								
		15.99	2(0.1)					
								
		16.03	9(0.5)					
								
		16.06	20(1.2)					
								
		16.07	1(0.1)					
								
		16.09	13(0.8)					
								
		16.10	26(1.6)					
								
		16.99	16(1.0)					
								
		17.01	1(0.1)					
								
		17.02	15(0.9)					
								
		18.08	5(0.3)					
								
		18.10	1(0.1)					
								
		18.99	5(0.3)					
								
		19.07	1(0.1)					
								
		22.01	3(0.2)					
								
		22.06	1(0.1)					
								
		22.16	1(0.1)					
								
		22.99	1(0.1)					
								
		23.01	1(0.1)					
								
		24.05	1(0.1)					
								
		25.03	2(0.1)					
								
		25.04	2(0.1)					
								
		25.05	3(0.2)					
								
		99.99	22(1.3)					
								
		Missing	1272(76.4)					
								
C1fMedication code	MEDCOD_5	02.02	1(0.1)					
								
		03.04	1(0.1)					
								
		03.17	1(0.1)					
								
		03.19	1(0.1)					
								
		03.20	1(0.1)					
								
		03.28	1(0.1)					
								
		03.36	1(0.1)					
								
		03.99	2(0.1)					
								
		04.00	1(0.1)					
								
		04.99	2(0.1)					
								
		06.22	4(0.2)					
								
		06.99	1(0.1)					
								
		07.02	26(1.6)					
								
		07.04	3(0.2)					
								
		07.05	1(0.1)					
								
		07.12	11(0.7)					
								
		08.03	1(0.1)					
								
		08.09	4(0.2)					
								
		08.20	1(0.1)					
								
		09.04	2(0.1)					
								
		09.08	7(0.4)					
								
		09.99	5(0.3)					
								
		10.01	12(0.7)					
								
		10.03	2(0.1)					
								
		10.05	3(0.2)					
								
		10.99	3(0.2)					
								
		13.02	1(0.1)					
								
		13.04	18(1.1)					
								
		13.05	2(0.1)					
								
		13.07	3(0.2)					
								
		14.03	1(0.1)					
								
		14.05	5(0.3)					
								
		14.08	7(0.4)					
								
		14.11	2(0.1)					
								
		14.13	9(0.5)					
								
		15.03	2(0.1)					
								
		15.04	2(0.1)					
								
		15.99	2(0.1)					
								
		16.01	1(0.1)					
								
		16.03	6(0.4)					
								
		16.05	1(0.1)					
								
		16.06	10(0.6)					
								
		16.08	1(0.1)					
								
		16.09	4(0.2)					
								
		16.10	15(0.9)					
								
		16.99	11(0.7)					
								
		17.02	6(0.4)					
								
		18.00	1(0.1)					
								
		18.08	6(0.4)					
								
		18.99	6(0.4)					
								
		19.07	1(0.1)					
								
		22.01	1(0.1)					
								
		22.05	2(0.1)					
								
		22.06	1(0.1)					
								
		25.03	1(0.1)					
								
		25.04	2(0.1)					
								
		25.05	1(0.1)					
								
		25.99	2(0.1)					
								
		99.99	20(1.2)					
								
		Missing	1413(84.9)					
								
C1gMedication code	MEDCOD_6	03.30	1(0.1)					
								
		04.02	1(0.1)					
								
		04.99	2(0.1)					
								
		05.00	1(0.1)					
								
		06.22	6(0.4)					
								
		07.02	5(0.3)					
								
		07.06	3(0.2)					
								
		07.12	1(0.1)					
								
		08.03	2(0.1)					
								
		08.09	2(0.1)					
								
		08.99	1(0.1)					
								
		09.04	1(0.1)					
								
		09.08	5(0.3)					
								
		09.99	2(0.1)					
								
		10.01	4(0.2)					
								
		10.03	2(0.1)					
								
		10.05	4(0.2)					
								
		10.06	2(0.1)					
								
		10.99	8(0.5)					
								
		11.04	1(0.1)					
								
		13.04	2(0.1)					
								
		13.07	1(0.1)					
								
		14.05	1(0.1)					
								
		14.08	3(0.2)					
								
		14.11	1(0.1)					
								
		14.13	11(0.7)					
								
		15.00	1(0.1)					
								
		15.02	1(0.1)					
								
		15.04	2(0.1)					
								
		15.99	1(0.1)					
								
		16.01	1(0.1)					
								
		16.03	2(0.1)					
								
		16.06	4(0.2)					
								
		16.07	2(0.1)					
								
		16.09	4(0.2)					
								
		16.10	5(0.3)					
								
		16.99	11(0.7)					
								
		17.02	2(0.1)					
								
		18.03	1(0.1)					
								
		18.08	1(0.1)					
								
		18.99	1(0.1)					
								
		19.02	1(0.1)					
								
		21.99	1(0.1)					
								
		22.05	2(0.1)					
								
		22.06	1(0.1)					
								
		22.09	1(0.1)					
								
		22.14	1(0.1)					
								
		25.03	2(0.1)					
								
		25.04	2(0.1)					
								
		25.05	1(0.1)					
								
		99.99	14(0.8)					
								
		Missing	1526(91.7)					
								
C1hMedication code	MEDCOD_7	03.04	2(0.1)					
								
		03.19	1(0.1)					
								
		03.22	1(0.1)					
								
		04.99	1(0.1)					
								
		05.99	1(0.1)					
								
		06.07	1(0.1)					
								
		06.22	1(0.1)					
								
		07.02	6(0.4)					
								
		07.12	2(0.1)					
								
		08.09	1(0.1)					
								
		09.08	5(0.3)					
								
		09.99	2(0.1)					
								
		10.01	4(0.2)					
								
		10.03	1(0.1)					
								
		10.05	2(0.1)					
								
		10.99	3(0.2)					
								
		13.02	1(0.1)					
								
		13.04	3(0.2)					
								
		14.03	2(0.1)					
								
		14.05	2(0.1)					
								
		14.08	3(0.2)					
								
		14.13	3(0.2)					
								
		14.99	1(0.1)					
								
		15.01	2(0.1)					
								
		15.04	1(0.1)					
								
		15.05	1(0.1)					
								
		15.99	1(0.1)					
								
		16.03	4(0.2)					
								
		16.05	1(0.1)					
								
		16.06	3(0.2)					
								
		16.08	2(0.1)					
								
		16.10	1(0.1)					
								
		16.99	3(0.2)					
								
		17.02	1(0.1)					
								
		18.08	2(0.1)					
								
		22.01	1(0.1)					
								
		22.05	1(0.1)					
								
		22.06	2(0.1)					
								
		25.03	1(0.1)					
								
		25.04	3(0.2)					
								
		25.05	1(0.1)					
								
		99.99	8(0.5)					
								
		Missing	1576(94.7)					
								
C1iMedication code	MEDCOD_8	03.05	1(0.1)					
								
		03.36	1(0.1)					
								
		04.99	3(0.2)					
								
		06.22	2(0.1)					
								
		07.06	2(0.1)					
								
		07.12	1(0.1)					
								
		08.13	1(0.1)					
								
		09.08	1(0.1)					
								
		10.01	2(0.1)					
								
		10.05	1(0.1)					
								
		10.06	1(0.1)					
								
		10.99	2(0.1)					
								
		13.04	2(0.1)					
								
		14.05	2(0.1)					
								
		14.08	3(0.2)					
								
		14.13	2(0.1)					
								
		15.02	1(0.1)					
								
		15.04	1(0.1)					
								
		15.05	1(0.1)					
								
		15.99	3(0.2)					
								
		16.03	1(0.1)					
								
		16.06	1(0.1)					
								
		16.07	1(0.1)					
								
		16.09	2(0.1)					
								
		16.10	1(0.1)					
								
		16.99	2(0.1)					
								
		17.02	2(0.1)					
								
		18.99	1(0.1)					
								
		22.01	1(0.1)					
								
		22.05	2(0.1)					
								
		25.03	1(0.1)					
								
		25.04	1(0.1)					
								
		25.05	1(0.1)					
								
		99.99	6(0.4)					
								
		Missing	1608(96.6)					
								
C1jMedication code	MEDCOD_9	03.23	1(0.1)					
								
		04.99	2(0.1)					
								
		06.22	2(0.1)					
								
		07.12	1(0.1)					
								
		08.09	2(0.1)					
								
		08.13	1(0.1)					
								
		09.08	1(0.1)					
								
		09.99	2(0.1)					
								
		10.01	1(0.1)					
								
		10.05	3(0.2)					
								
		12.02	1(0.1)					
								
		13.04	1(0.1)					
								
		14.05	1(0.1)					
								
		14.08	2(0.1)					
								
		15.02	1(0.1)					
								
		15.99	3(0.2)					
								
		16.09	1(0.1)					
								
		16.99	3(0.2)					
								
		18.99	1(0.1)					
								
		22.06	1(0.1)					
								
		25.05	1(0.1)					
								
		99.99	9(0.5)					
								
		Missing	1623(97.5)					
								
C1kMedication code	MEDCOD_10	03.34	1(0.1)					
								
		04.99	1(0.1)					
								
		07.02	1(0.1)					
								
		07.12	1(0.1)					
								
		08.03	1(0.1)					
								
		09.08	1(0.1)					
								
		09.99	3(0.2)					
								
		10.01	4(0.2)					
								
		10.06	3(0.2)					
								
		13.04	1(0.1)					
								
		14.08	1(0.1)					
								
		14.09	1(0.1)					
								
		14.13	1(0.1)					
								
		15.99	1(0.1)					
								
		16.07	1(0.1)					
								
		16.99	2(0.1)					
								
		18.02	1(0.1)					
								
		18.08	1(0.1)					
								
		18.99	1(0.1)					
								
		99.99	4(0.2)					
								
		Missing	1633(98.1)					
								
C1lMedication code	MEDCOD_11	03.27	1(0.1)					
								
		04.99	4(0.2)					
								
		08.13	1(0.1)					
								
		09.03	1(0.1)					
								
		09.08	3(0.2)					
								
		09.99	1(0.1)					
								
		10.05	1(0.1)					
								
		13.04	1(0.1)					
								
		14.13	1(0.1)					
								
		15.04	1(0.1)					
								
		15.99	4(0.2)					
								
		16.03	1(0.1)					
								
		17.02	1(0.1)					
								
		22.13	1(0.1)					
								
		99.99	2(0.1)					
								
		Missing	1640(98.6)					
								
C1mMedication code	MEDCOD_12	03.99	1(0.1)					
								
		04.99	1(0.1)					
								
		06.07	1(0.1)					
								
		07.02	1(0.1)					
								
		09.99	2(0.1)					
								
		10.01	1(0.1)					
								
		10.99	1(0.1)					
								
		14.04	1(0.1)					
								
		14.08	3(0.2)					
								
		15.99	1(0.1)					
								
		16.06	1(0.1)					
								
		16.99	1(0.1)					
								
		18.08	1(0.1)					
								
		99.99	1(0.1)					
								
		Missing	1647(99.0)					
								
C1nMedication code	MEDCOD_13	03.26	2(0.1)					
								
		06.22	1(0.1)					
								
		12.99	1(0.1)					
								
		13.04	2(0.1)					
								
		15.02	2(0.1)					
								
		15.99	1(0.1)					
								
		16.99	1(0.1)					
								
		19.07	1(0.1)					
								
		25.04	1(0.1)					
								
		99.99	2(0.1)					
								
		Missing	1650(99.2)					
								
C1oMedication code	MEDCOD_14	03.12	1(0.1)					
								
		03.15	1(0.1)					
								
		03.27	2(0.1)					
								
		03.30	1(0.1)					
								
		03.99	1(0.1)					
								
		09.99	1(0.1)					
								
		11.05	1(0.1)					
								
		14.13	1(0.1)					
								
		15.99	1(0.1)					
								
		16.09	1(0.1)					
								
		16.99	1(0.1)					
								
		21.99	1(0.1)					
								
		Missing	1651(99.2)					
								
C1pMedication code	MEDCOD_15	03.99	2(0.1)					
								
		04.99	1(0.1)					
								
		09.99	1(0.1)					
								
		16.09	1(0.1)					
								
		16.99	3(0.2)					
								
		18.99	1(0.1)					
								
		22.03	1(0.1)					
								
		22.99	1(0.1)					
								
		25.04	1(0.1)					
								
		Missing	1652(99.3)					
								
C1qMedication code	MEDCOD_16	04.99	2(0.1)					
								
		06.22	1(0.1)					
								
		09.08	2(0.1)					
								
		10.05	1(0.1)					
								
		15.99	1(0.1)					
								
		18.99	1(0.1)					
								
		19.07	2(0.1)					
								
		99.99	1(0.1)					
								
		Missing	1653(99.3)					
								
C1rMedication code	MEDCOD_17	03.13	1(0.1)					
								
		05.01	1(0.1)					
								
		06.22	1(0.1)					
								
		07.02	1(0.1)					
								
		09.08	1(0.1)					
								
		09.99	2(0.1)					
								
		10.01	1(0.1)					
								
		10.99	1(0.1)					
								
		18.99	1(0.1)					
								
		Missing	1654(99.4)					
								
C1sMedication code	MEDCOD_18	03.22	1(0.1)					
								
		03.35	1(0.1)					
								
		10.06	1(0.1)					
								
		11.05	2(0.1)					
								
		16.99	1(0.1)					
								
		18.08	1(0.1)					
								
		Missing	1657(99.6)					
								
C1tMedication code	MEDCOD_19	03.30	2(0.1)					
								
		08.03	1(0.1)					
								
		16.07	1(0.1)					
								
		19.03	1(0.1)					
								
		22.01	1(0.1)					
								
		Missing	1658(99.6)					
								
C1uMedication code	MEDCOD_20	05.01	2(0.1)					
								
		15.99	1(0.1)					
								
		16.09	1(0.1)					
								
		Missing	1660(99.8)					
								
C1vMedication code	MEDCOD_21	14.13	1(0.1)					
								
		16.09	1(0.1)					
								
		16.99	2(0.1)					
								
		Missing	1660(99.8)					
								
C1wMedication code	MEDCOD_22	15.99	2(0.1)					
								
		22.07	1(0.1)					
								
		Missing	1661(99.8)					
								
C1xMedication code	MEDCOD_23	03.23	1(0.1)					
								
		03.37	1(0.1)					
								
		18.99	1(0.1)					
								
		Missing	1661(99.8)					
								
C1yMedication code	MEDCOD_24	07.08	1(0.1)					
								
		99.99	1(0.1)					
								
		Missing	1662(99.9)					
								
C1zMedication code	MEDCOD_25	09.99	1(0.1)					
								
		22.11	1(0.1)					
								
		Missing	1662(99.9)					
								
C1AMedication code	MEDCOD_26	03.37	1(0.1)					
								
		16.10	1(0.1)					
								
		Missing	1662(99.9)					
								
C1BMedication code	MEDCOD_27	10.01	1(0.1)					
								
		22.99	1(0.1)					
								
		Missing	1662(99.9)					
								
C1CMedication code	MEDCOD_28	02.09	1(0.1)					
								
		14.99	1(0.1)					
								
		Missing	1662(99.9)					
								
C1EMedication code	MEDCOD_29	16.99	1(0.1)					
								
		22.13	1(0.1)					
								
		Missing	1662(99.9)					
								
C1DMedication code	MEDCOD_30	15.03	1(0.1)					
								
		Missing	1663(99.9)					
								
C1FMedication code	MEDCOD_31	03.26	1(0.1)					
								
		Missing	1663(99.9)					
								
C1GMedication code	MEDCOD_32	16.03	1(0.1)					
								
		Missing	1663(99.9)					
								
C1HMedication code	MEDCOD_33	19.07	1(0.1)					
								
		Missing	1663(99.9)					
								
C1IMedication code	MEDCOD_34	22.09	1(0.1)					
								
		Missing	1663(99.9)					
								
C1JMedication code	MEDCOD_35	15.99	1(0.1)					
								
		Missing	1663(99.9)					
								
C1KMedication code	MEDCOD_36	06.17	1(0.1)					
								
		Missing	1663(99.9)					
								
C1LMedication code	MEDCOD_37	22.99	1(0.1)					
								
		Missing	1663(99.9)					
								
C1MMedication code	MEDCOD_38	16.06	1(0.1)					
								
		Missing	1663(99.9)					
								
C1NMedication code	MEDCOD_39	18.09	1(0.1)					
								
		Missing	1663(99.9)					
								
C1OMedication code	MEDCOD_40	03.35	1(0.1)					
								
		Missing	1663(99.9)					
								
C1PMedication code	MEDCOD_41	23.04	1(0.1)					
								
		Missing	1663(99.9)					
								
C1QMedication code	MEDCOD_42	03.37	1(0.1)					
								
		Missing	1663(99.9)					
								
C1RMedication code	MEDCOD_43	18.99	1(0.1)					
								
		Missing	1663(99.9)					
								
C1SMedication code	MEDCOD_44	21.99	1(0.1)					
								
		Missing	1663(99.9)					
								
C1TMedication code	MEDCOD_45	22.15	1(0.1)					
								
		Missing	1663(99.9)					
								
C1UMedication code	MEDCOD_46	14.11	1(0.1)					
								
		Missing	1663(99.9)					
								
C1VMedication code	MEDCOD_47	25.03	1(0.1)					
								
		Missing	1663(99.9)					
								
C1WMedication code	MEDCOD_48	03.28	1(0.1)					
								
		Missing	1663(99.9)					
								
C1aMedication name	MEDNAME_0			()	()	(,)	-	
								
C1bMedication name	MEDNAME_1			()	()	(,)	-	
								
C1cMedication name	MEDNAME_2			()	()	(,)	-	
								
C1dMedication name	MEDNAME_3			()	()	(,)	-	
								
C1eMedication name	MEDNAME_4			()	()	(,)	-	
								
C1fMedication name	MEDNAME_5			()	()	(,)	-	
								
C1gMedication name	MEDNAME_6			()	()	(,)	-	
								
C1hMedication name	MEDNAME_7			()	()	(,)	-	
								
C1iMedication name	MEDNAME_8			()	()	(,)	-	
								
C1jMedication name	MEDNAME_9			()	()	(,)	-	
								
C1kMedication name	MEDNAME_10			()	()	(,)	-	
								
C1lMedication name	MEDNAME_11			()	()	(,)	-	
								
C1mMedication name	MEDNAME_12			()	()	(,)	-	
								
C1nMedication name	MEDNAME_13			()	()	(,)	-	
								
C1oMedication name	MEDNAME_14			()	()	(,)	-	
								
C1pMedication name	MEDNAME_15			()	()	(,)	-	
								
C1qMedication name	MEDNAME_16			()	()	(,)	-	
								
C1rMedication name	MEDNAME_17			()	()	(,)	-	
								
C1sMedication name	MEDNAME_18			()	()	(,)	-	
								
C1tMedication name	MEDNAME_19			()	()	(,)	-	
								
C1uMedication name	MEDNAME_20			()	()	(,)	-	
								
C1vMedication name	MEDNAME_21			()	()	(,)	-	
								
C1wMedication name	MEDNAME_22			()	()	(,)	-	
								
C1xMedication name	MEDNAME_23			()	()	(,)	-	
								
C1yMedication name	MEDNAME_24			()	()	(,)	-	
								
C1zMedication name	MEDNAME_25			()	()	(,)	-	
								
C1AMedication name	MEDNAME_26			()	()	(,)	-	
								
C1BMedication name	MEDNAME_27			()	()	(,)	-	
								
C1CMedication name	MEDNAME_28			()	()	(,)	-	
								
C1EMedication name	MEDNAME_29			()	()	(,)	-	
								
C1DMedication name	MEDNAME_30			()	()	(,)	-	
								
C1FMedication name	MEDNAME_31			()	()	(,)	-	
								
C1GMedication name	MEDNAME_32			()	()	(,)	-	
								
C1HMedication name	MEDNAME_33			()	()	(,)	-	
								
C1IMedication name	MEDNAME_34			()	()	(,)	-	
								
C1JMedication name	MEDNAME_35			()	()	(,)	-	
								
C1KMedication name	MEDNAME_36			()	()	(,)	-	
								
C1LMedication name	MEDNAME_37			()	()	(,)	-	
								
C1MMedication name	MEDNAME_38			()	()	(,)	-	
								
C1NMedication name	MEDNAME_39			()	()	(,)	-	
								
C1OMedication name	MEDNAME_40			()	()	(,)	-	
								
C1PMedication name	MEDNAME_41			()	()	(,)	-	
								
C1QMedication name	MEDNAME_42			()	()	(,)	-	
								
C1RMedication name	MEDNAME_43			()	()	(,)	-	
								
C1SMedication name	MEDNAME_44			()	()	(,)	-	
								
C1TMedication name	MEDNAME_45			()	()	(,)	-	
								
C1UMedication name	MEDNAME_46			()	()	(,)	-	
								
C1VMedication name	MEDNAME_47			()	()	(,)	-	
								
C1WMedication name	MEDNAME_48			()	()	(,)	-	
								
D1. Patient age (years) at physical exam	PHYEXAM_AGE			1593(71)	3.75(1.41)	3.83(2.70,4.91)	1.10-7.33	
								
D2. Length/height	HGT_CM			1528(136)	96.02(10.82)	96.00(88.00,104.00)	68.00-138.40	
								
D3. Weight	WGT_KG			1611(53)	14.74(3.49)	14.48(12.20,16.70)	7.00-33.30	
								
D4. Fontan procedure	FONTAN	No	1340(80.5)					
								
		Yes	324(19.5)					
								
D4a. Patient age (years) at Fontan procedure	FONTAN_AGE			322(1342)	2.90(0.84)	2.84(2.26,3.38)	1.25-5.90	
								
D5. Is the Fontan procedure planned?	FONTAN_PLAN	Missing	10(0.6)					
								
		No	797(47.9)					
								
		Skipped	314(18.9)					
								
		Unknown	48(2.9)					
								
		Yes	495(29.7)					
								
D6. If no, specify reason:	FONTAN_S			()	()	(,)	-	
								
E1.a. Speech or language therapy	TALK_12M	No	252(15.1)					
								
		Skipped	1300(78.1)					
								
		Unknown	26(1.6)					
								
		Yes	86(5.2)					
								
E1.b. Frequency	TALKFRE_12M			79(1585)	1.41(1.00)	1.00(1.00,2.00)	0.10-5.00	
								
E1.c. Duration	TALKDUR_12M			80(1584)	7.74(4.63)	10.50(3.00,12.00)	0.50-12.00	
								
E1.d. Discontinued	TALKDIS_12M	No	67(4.0)					
								
		Skipped	1578(94.8)					
								
		Unknown	1(0.1)					
								
		Yes	18(1.1)					
								
E1.e. Reason	TALKREA_12M			()	()	(,)	-	
								
E2.a. Physical therapy	PHY_12M	No	215(12.9)					
								
		Skipped	1300(78.1)					
								
		Unknown	26(1.6)					
								
		Yes	123(7.4)					
								
E2.b. Frequency	PHYFRE_12M			117(1547)	1.38(0.84)	1.00(1.00,2.00)	0.10-5.00	
								
E2.c. Duration	PHYDUR_12M			116(1548)	7.86(4.03)	8.00(5.00,12.00)	0.50-12.00	
								
E2.d. Discontiuned	PHYDIS_12M	No	97(5.8)					
								
		Skipped	1541(92.6)					
								
		Unknown	2(0.1)					
								
		Yes	24(1.4)					
								
E2.e. Reason	PHYREA_12M			()	()	(,)	-	
								
E3.a. Occupational therapy	OCCU_12M	No	253(15.2)					
								
		Skipped	1300(78.1)					
								
		Unknown	26(1.6)					
								
		Yes	85(5.1)					
								
E3.b. Frequency	OCCUFRE_12M			82(1582)	1.37(0.94)	1.00(1.00,2.00)	0.20-5.00	
								
E3.c. Duration	OCCUDUR_12M			79(1585)	8.40(4.09)	10.00(6.00,12.00)	0.50-12.00	
								
E3.d. Discontiuned	OCCUDIS_12M	No	69(4.1)					
								
		Skipped	1579(94.9)					
								
		Yes	16(1.0)					
								
E3.e. Reason	OCCUREA_12M			()	()	(,)	-	
								
E4.a. Early intervention for cognitive disorder	INT_12M	No	307(18.4)					
								
		Skipped	1300(78.1)					
								
		Unknown	26(1.6)					
								
		Yes	31(1.9)					
								
E4.b. Frequency	INTFRE_12M			26(1638)	1.45(1.22)	1.00(0.50,2.00)	0.20-5.00	
								
E4.c. Duration	INTDUR_12M			27(1637)	7.35(3.93)	6.00(4.00,12.00)	0.50-12.00	
								
E4.d. Discontiuned	INTDIS_12M	No	23(1.4)					
								
		Skipped	1633(98.1)					
								
		Unknown	1(0.1)					
								
		Yes	7(0.4)					
								
E4.e. Reason	INTREA_12M			()	()	(,)	-	
								
E5.a. Treatment	TREA_12M	No	338(20.3)					
								
		Skipped	1300(78.1)					
								
		Unknown	26(1.6)					
								
E5.b. Frequency	TREAFRE_12M							
								
E5.c. Duration	TREADUR_12M							
								
E5.d. Discontiuned	TREADIS_12M	Skipped	1664(100.0)					
								
E5.e. Reason	TREAREA_12M			()	()	(,)	-	
								
E6.a. Other	OTH_12M	No	324(19.5)					
								
		Skipped	1300(78.1)					
								
		Unknown	26(1.6)					
								
		Yes	14(0.8)					
								
E6.a1. Other, specify	OTHS_12M			()	()	(,)	-	
								
E6.b. Frequency	OTHFRE_12M			13(1651)	1.05(0.83)	1.00(0.50,1.00)	0.20-3.00	
								
E6.c. Duration	OTHDUR_12M			13(1651)	9.31(3.28)	11.00(7.00,12.00)	4.00-12.00	
								
E6.d. Discontiuned	OTHDIS_12M	No	14(0.8)					
								
		Skipped	1650(99.2)					
								
E6.e. Reason	OTHREA_12M			()	()	(,)	-	
								
E7. Hearing problem	HEAR_12M	No	330(19.8)					
								
		Skipped	1300(78.1)					
								
		Unknown	22(1.3)					
								
		Yes	12(0.7)					
								
E7.a. Hearing intervention	HEARINT_12M	No	5(0.3)					
								
		Skipped	1652(99.3)					
								
		Yes	7(0.4)					
								
E7.b. If yes, identify the intervention:	HEARS_12M			()	()	(,)	-	
								
E8. Vision problem	SEE_12M	No	328(19.7)					
								
		Skipped	1300(78.1)					
								
		Unknown	22(1.3)					
								
		Yes	14(0.8)					
								
E8.a. Vision intervention	SEEINT_12M	No	5(0.3)					
								
		Skipped	1650(99.2)					
								
		Yes	9(0.5)					
								
E8.b. If yes, identi.fy the intervention:	SEES_12M			()	()	(,)	-	
								
E9.a. Speech or language therapy	TALK_FU	No	1170(70.3)					
								
		Skipped	4(0.2)					
								
		Unknown	64(3.8)					
								
		Yes	426(25.6)					
								
E9.b. Frequency	TALKFRE_FU			401(1263)	1.56(1.11)	1.00(1.00,2.00)	0.10-5.00	
								
E9.c. Duration	TALKDUR_FU			398(1266)	8.35(4.39)	12.00(4.00,12.00)	0.50-12.00	
								
E9.d. Discontiuned	TALKDIS_FU	Do Not Know	7(0.4)					
								
		Missing	220(13.2)					
								
		No	352(21.2)					
								
		Skipped	1018(61.2)					
								
		Yes	67(4.0)					
								
E9.e. Reason	TALKREA_FU			()	()	(,)	-	
								
E10.a. Physical therapy	PHY_FU	No	1208(72.6)					
								
		Skipped	4(0.2)					
								
		Unknown	64(3.8)					
								
		Yes	388(23.3)					
								
E10.b. Frequency	PHYFRE_FU			368(1296)	1.45(1.03)	1.00(1.00,2.00)	0.10-7.00	
								
E10.c. Duration	PHYDUR_FU			370(1294)	8.84(4.23)	12.00(6.00,12.00)	0.50-12.00	
								
E10.d. Discontiuned	PHYDIS_FU	Do Not Know	8(0.5)					
								
		Missing	239(14.4)					
								
		No	310(18.6)					
								
		Skipped	1037(62.3)					
								
		Yes	70(4.2)					
								
E10.e. Reason	PHYREA_FU			()	()	(,)	-	
								
E11.a. Occupational therapy	OCCU_FU	No	1244(74.8)					
								
		Skipped	4(0.2)					
								
		Unknown	67(4.0)					
								
		Yes	349(21.0)					
								
E11.b. Frequency	OCCUFRE_FU			331(1333)	1.38(0.93)	1.00(1.00,2.00)	0.10-5.00	
								
E11.c. Duration	OCCUDUR_FU			331(1333)	8.82(4.19)	12.00(6.00,12.00)	0.50-12.00	
								
E11.d. Discontiuned	OCCUDIS_FU	Do Not Know	5(0.3)					
								
		Missing	227(13.6)					
								
		No	294(17.7)					
								
		Skipped	1088(65.4)					
								
		Yes	50(3.0)					
								
E11.e. Reason	OCCUREA_FU			()	()	(,)	-	
								
E12.a. Early intervention for cognitive disorder	INT_FU	No	1503(90.3)					
								
		Skipped	4(0.2)					
								
		Unknown	67(4.0)					
								
		Yes	90(5.4)					
								
E12.b. Frequency	INTFRE_FU			79(1585)	1.82(1.52)	1.00(1.00,3.00)	0.10-5.00	
								
E12.c. Duration	INTDUR_FU			79(1585)	8.46(4.44)	12.00(4.00,12.00)	1.00-12.00	
								
E12.d. Discontiuned	INTDIS_FU	Do Not Know	6(0.4)					
								
		Missing	281(16.9)					
								
		No	62(3.7)					
								
		Skipped	1293(77.7)					
								
		Yes	22(1.3)					
								
E12.e. Reason	INTREA_FU			()	()	(,)	-	
								
E13.a. Treatment	TREA_FU	No	1577(94.8)					
								
		Skipped	4(0.2)					
								
		Unknown	66(4.0)					
								
		Yes	17(1.0)					
								
E13.b. Frequency	TREAFRE_FU			16(1648)	1.22(1.16)	1.00(0.65,1.30)	0.10-5.00	
								
E13.c. Duration	TREADUR_FU			16(1648)	7.94(5.00)	11.50(2.00,12.00)	1.00-12.00	
								
E13.d. Discontiuned	TREADIS_FU	Do Not Know	1(0.1)					
								
		Missing	283(17.0)					
								
		No	14(0.8)					
								
		Skipped	1364(82.0)					
								
		Yes	2(0.1)					
								
E13.e. Reason	TREAREA_FU			()	()	(,)	-	
								
E14.a. Other	OTH_FU	No	1513(90.9)					
								
		Skipped	4(0.2)					
								
		Unknown	66(4.0)					
								
		Yes	81(4.9)					
								
E14.a.1. Other, specify	OTHS_FU			()	()	(,)	-	
								
E14.b. Frequency	OTHFRE_FU			74(1590)	2.58(1.92)	2.00(1.00,5.00)	0.20-5.00	
								
E14.c. Duration	OTHDUR_FU			72(1592)	8.82(3.89)	11.00(6.00,12.00)	1.00-12.00	
								
E14.d. Discontiuned	OTHDIS_FU	Missing	269(16.2)					
								
		No	69(4.1)					
								
		Skipped	1314(79.0)					
								
		Unknown	3(0.2)					
								
		Yes	9(0.5)					
								
E14.e. Reason	OTHREA_FU			()	()	(,)	-	
								
E15. Hearing problem	HEAR_FU	No	1536(92.3)					
								
		Skipped	4(0.2)					
								
		Unknown	45(2.7)					
								
		Yes	79(4.7)					
								
E15.a. Hearing intervention	HEARINT_FU	No	47(2.8)					
								
		Skipped	1585(95.3)					
								
		Yes	32(1.9)					
								
E15.b. If yes, identify the intervention:	HEARS_FU			()	()	(,)	-	
								
E16. Vision problem	SEE_FU	No	1481(89.0)					
								
		Skipped	4(0.2)					
								
		Unknown	44(2.6)					
								
		Yes	135(8.1)					
								
E16.a. Vision intervention	SEEINT_FU	No	49(2.9)					
								
		Skipped	1529(91.9)					
								
		Yes	86(5.2)					
								
E16.b. If yes, identify the intervention:	SEES_FU			()	()	(,)	-	
								
F1.a. Regular Texture Diet	DIET_REG	Missing	86(5.2)					
								
		No	167(10.0)					
								
		Yes	1411(84.8)					
								
F1.b. Low Fat Diet	DIET_LOWFAT	Missing	86(5.2)					
								
		No	1546(92.9)					
								
		Yes	32(1.9)					
								
F1.c. Low Salt Diet	DIET_LOWSALT	Missing	86(5.2)					
								
		No	1556(93.5)					
								
		Yes	22(1.3)					
								
F1.d. Pureed/Soft Diet	DIET_SOFT	Missing	86(5.2)					
								
		No	1502(90.3)					
								
		Yes	76(4.6)					
								
F1.e. Thickened Liquids	DIET_THICKLQ	Missing	86(5.2)					
								
		No	1541(92.6)					
								
		Yes	37(2.2)					
								
<created var>F1.f. Formula diet	DIET_FORMULA	Missing	45(2.7)					
								
		No	466(28.0)					
								
		Skipped	1121(67.4)					
								
		Yes	32(1.9)					
								
<created var>F1.g. Caloric Augmentation	DIET_AUGMEN	Missing	45(2.7)					
								
		No	441(26.5)					
								
		Skipped	1088(65.4)					
								
		Yes	90(5.4)					
								
F1.h. Other	DIET_OTHER	Missing	87(5.2)					
								
		No	1424(85.6)					
								
		Yes	153(9.2)					
								
F1.h.i. Other, specify	DIET_OTHER_S			()	()	(,)	-	
								
F2. How is child fed?	FED_TYPE	Missing	84(5.0)					
								
		Mouth Only	1336(80.3)					
								
		Mouth with some tube feeding supplements	153(9.2)					
								
		Tube feeding only	91(5.5)					
								
F3. Tube type?	TUBE_TYPE	G-J-Tube	24(1.4)					
								
		G-tube (gastrostomy tube)	212(12.7)					
								
		Missing	83(5.0)					
								
		NG-tube (nasogastric tube)	9(0.5)					
								
		Skipped	1336(80.3)					
								
F4. Has child experienced feeding issues in the past 12 months?	FEED_ISSUES	Missing	91(5.5)					
								
		No	1260(75.7)					
								
		Yes	313(18.8)					
								
F4.a.1. Types of problems:  Oral aversion	FEED_ORALAVE	Missing	73(4.4)					
								
		No	176(10.6)					
								
		Skipped	1279(76.9)					
								
		Yes	136(8.2)					
								
F4.a.2. Types of problems:  Swallowing disorders	FEED_SWALLOW	Missing	73(4.4)					
								
		No	237(14.2)					
								
		Skipped	1279(76.9)					
								
		Yes	75(4.5)					
								
F4.a.3. Types of problems:  Reflux	FEED_REFLUX	Missing	74(4.4)					
								
		No	115(6.9)					
								
		Skipped	1279(76.9)					
								
		Yes	196(11.8)					
								
<created var>F4.a.5. Types of Problems: Gagging	FEED_GAGGING	Missing	6(0.4)					
								
		No	38(2.3)					
								
		Skipped	1587(95.4)					
								
		Yes	33(2.0)					
								
F4.a.5. Types of problems:  Frequent vomiting	FEED_VOMIT	Missing	75(4.5)					
								
		No	217(13.0)					
								
		Skipped	1279(76.9)					
								
		Yes	93(5.6)					
								
F4a5i-iii. Specify frequency of vomiting	FEED_FREQVOM	1-3 times per week	43(2.6)					
								
		4-6 times per week	17(1.0)					
								
		Missing	336(20.2)					
								
		more than 6 times per week	31(1.9)					
								
		Skipped	1237(74.3)					
								
F4.a.6. Other feeding issues in the past 12 months	FEED_OTHER	Missing	72(4.3)					
								
		No	256(15.4)					
								
		Skipped	1279(76.9)					
								
		Yes	57(3.4)					
								
F4.a.6.i. Specify  feeding issues experienced in the past 12 months	FEED_OTHER_S			()	()	(,)	-	
								
F5. Receive therapy for feeding or swallowing issues?	FEED_RX	Missing	101(6.1)					
								
		No	1402(84.3)					
								
		Yes	161(9.7)