Variable Label (VAR)	Variable Name	Category	N(%)	N(Missing)	Mean(SD)	Median(Q1,Q3)	Range of Values	
A1. Blind_ID	BLIND_ID			387(0)	483.01(274.22)	452.00(250.00,720.00)	2.00-919.00	
								
A2. Study visit	VISIT	Genetics visit	387(100.0)					
								
D1. Sibling#	SIBLING_NUM	1	191(49.4)					
								
		2	108(27.9)					
								
		3	41(10.6)					
								
		4	20(5.2)					
								
		5	12(3.1)					
								
		6	6(1.6)					
								
		7	4(1.0)					
								
		8	2(0.5)					
								
		9	1(0.3)					
								
		10	1(0.3)					
								
		11	1(0.3)					
								
D1a. Is this a boy or a girl?	SIB_GENDER	Female	207(53.5)					
								
		Male	180(46.5)					
								
D1b. What is this child's age (years) at form completion?	SIBLING_AGE_YEARS			381(6)	9.65(6.45)	9.06(4.65,14.17)	0.00-41.77	
								
D1c. Does this child have the same parents as your child participating in the study?	SIB_PARENTS	No	111(28.7)					
								
		Yes	276(71.3)					
								
D1di. Does this child have the same mother? (Maternal half sibling)	SAME_MOM	No	37(9.6)					
								
		Skipped	276(71.3)					
								
		Yes	74(19.1)					
								
D1dii. Does this child have the same father (Paternal half sibling)	SAME_DAD	No	74(19.1)					
								
		Skipped	276(71.3)					
								
		Yes	37(9.6)					
								
D1e. Does this child have a heart problem? (Cardiac defect)	HEART_PROB	No	365(94.3)					
								
		Unknown	4(1.0)					
								
		Yes	18(4.7)					
								
D1f. How many heart problems does this child have? (Number of cardiac defects)	HEART_PROB_N			18(369)	1.33(0.59)	1.00(1.00,2.00)	1.00-3.00	
								
D1f11. Type of cardiac defect	H_PROB_1_1	02 Aortic outflow abnormalities (valvular AS, AR)	1(0.3)					
								
		05 ASD	2(0.5)					
								
		06 Bicuspid aortic valve	5(1.3)					
								
		17 IAA/VSD	1(0.3)					
								
		21 Patent ductus arteriosus	1(0.3)					
								
		34 Vascular rings and slings	1(0.3)					
								
		35 VSD	3(0.8)					
								
		99 Other	3(0.8)					
								
		Missing	370(95.6)					
								
D1f12. Type of cardiac defect	H_PROB_1_2	21 Patent ductus arteriosus	1(0.3)					
								
		23 Pulmonary stenosis	1(0.3)					
								
		35 VSD	3(0.8)					
								
		99 Other	4(1.0)					
								
		Missing	378(97.7)					
								
D1f13. Type of cardiac defect	H_PROB_1_3	99 Other	1(0.3)					
								
		Missing	386(99.7)					
								
D1f11. Specify other cardiac defect	H_PROB_1_SP1			()	()	(,)	-	
								
D1f12. Specify other cardiac defect	H_PROB_1_SP2			()	()	(,)	-	
								
D1f13. Specify other cardiac defect	H_PROB_1_SP3			()	()	(,)	-	
								
D1g. Does this child have any other medical or genetic problems?	MED_PROB	No	312(80.6)					
								
		Unknown	5(1.3)					
								
		Yes	70(18.1)					
								
D1i. Has this child been hospitalized for any medical problems? (Not including hospitalizations for surgery)	HOSPITAL	No	334(86.3)					
								
		Unknown	8(2.1)					
								
		Yes	45(11.6)					
								
D1k. Has this child had any surgeries?	SURGERY	No	305(78.8)					
								
		Unknown	7(1.8)					
								
		Yes	75(19.4)					
								
Z1. How long did it take to complete this form?	COMP_TIME			387(0)	10.55(9.68)	5.00(5.00,15.00)	1.00-45.00