Variable Label (VAR)	Variable Name	Category	N(%)	N(Missing)	Mean(SD)	Median(Q1,Q3)	Range of Values	
A1. Blind_ID	BLIND_ID			220(0)	491.95(276.58)	502.00(251.50,747.00)	2.00-919.00	
								
A3. Study visit	VISIT	Study visit 6 (3 years)	220(100.0)					
								
A5. Subject gender	GENDER	Female	82(37.3)					
								
		Male	138(62.7)					
								
A6. Form completed with/without assistance	ASSISTANCE	No	16(7.3)					
								
		Yes	204(92.7)					
								
A6a. Form completed without assistance	NOASSIST	Father	12(5.5)					
								
		Mother	188(85.5)					
								
		Other primary caregiver	4(1.8)					
								
		Skipped	16(7.3)					
								
A6b. Form completed with assistance	WITHASSIST	Father	1(0.5)					
								
		Mother	14(6.4)					
								
		Other primary caregiver	1(0.5)					
								
		Skipped	204(92.7)					
								
A6c. Method	WITHASSIS_ME	In-person	2(0.9)					
								
		Missing	7(3.2)					
								
		Phone interview	7(3.2)					
								
		Skipped	204(92.7)					
								
A7. Patient age (years) at instrument completion	PATIENT_AGE_INSTR			220(0)	3.05(0.14)	3.02(2.97,3.07)	2.78-3.76	
								
B1. Point body parts	POINT	Not yet	12(5.5)					
								
		Sometimes	3(1.4)					
								
		Yes	205(93.2)					
								
B1a. Point body parts score	POINT_SC			220(0)	9.39(2.33)	10.00(10.00,10.00)	0.00-10.00	
								
B2. Make sentences 3-4 words long	SENTENCE	Missing	1(0.5)					
								
		Not yet	32(14.5)					
								
		Sometimes	16(7.3)					
								
		Yes	171(77.7)					
								
B2a. Make sentences 3-4 words long score	SENTENCE_SC			219(1)	8.17(3.63)	10.00(10.00,10.00)	0.00-10.00	
								
B3. Carry ouy directions	DIRECTIONS	Missing	1(0.5)					
								
		Not yet	17(7.7)					
								
		Sometimes	25(11.4)					
								
		Yes	177(80.5)					
								
B3a. Carry out directions score	DIRECTION_SC			219(1)	8.65(2.97)	10.00(10.00,10.00)	0.00-10.00	
								
B4. Describe action on a picture	PICTURE	Missing	1(0.5)					
								
		Not yet	31(14.1)					
								
		Sometimes	34(15.5)					
								
		Yes	154(70.0)					
								
B4a. Describe action on a picture score	PICTURE_SC			219(1)	7.81(3.65)	10.00(5.00,10.00)	0.00-10.00	
								
B5. Move zipper up and down	UP_DOWN	Missing	2(0.9)					
								
		Not yet	22(10.0)					
								
		Sometimes	30(13.6)					
								
		Yes	166(75.5)					
								
B5a. Move zipper up and down score	UP_DOWN_SC			218(2)	8.30(3.27)	10.00(10.00,10.00)	0.00-10.00	
								
B6. First and last name	NAME2	Missing	1(0.5)					
								
		Not yet	90(40.9)					
								
		Sometimes	50(22.7)					
								
		Yes	79(35.9)					
								
B6a. First and last name score	NAME_SC			219(1)	4.75(4.40)	5.00(0.00,10.00)	0.00-10.00	
								
B7. Communication total score	COMMUN_SC			219(1)	47.05(14.75)	50.00(45.00,60.00)	0.00-60.00	
								
C1. Kick a ball by swinging leg forward	KICK_BALL	Not yet	18(8.2)					
								
		Sometimes	17(7.7)					
								
		Yes	185(84.1)					
								
C1a. Kick a ball by swinging leg forward score	KICK_BALL_SC			220(0)	8.80(2.95)	10.00(10.00,10.00)	0.00-10.00	
								
C2. Jump with both feet leaving the floor	JUMP	Not yet	39(17.7)					
								
		Sometimes	27(12.3)					
								
		Yes	154(70.0)					
								
C2a. Jump with both feet leaving the floor score	JUMP_SC			220(0)	7.61(3.89)	10.00(5.00,10.00)	0.00-10.00	
								
C3. Walking up stairs by one foot on each stair	UPSTAIRS	Not yet	46(20.9)					
								
		Sometimes	51(23.2)					
								
		Yes	123(55.9)					
								
C3a. Walking up stairs by one foot on each stair score	UPSTAIRS_SC			220(0)	6.75(4.03)	10.00(5.00,10.00)	0.00-10.00	
								
C4. Stand on one foot 1 sec	STAND	Missing	2(0.9)					
								
		Not yet	56(25.5)					
								
		Sometimes	34(15.5)					
								
		Yes	128(58.2)					
								
C4a. Stand on one foot 1 sec score	STAND_SC			218(2)	6.65(4.30)	10.00(0.00,10.00)	0.00-10.00	
								
C5. Throwing ball forward	THROW_BALL	Not yet	21(9.5)					
								
		Sometimes	19(8.6)					
								
		Yes	180(81.8)					
								
C5a. Throwing ball forward score	THROW_B_SC			220(0)	8.61(3.13)	10.00(10.00,10.00)	0.00-10.00	
								
C6. Jump forward	JUMP_F	Missing	1(0.5)					
								
		Not yet	85(38.6)					
								
		Sometimes	39(17.7)					
								
		Yes	95(43.2)					
								
C6a. Jump forward score	JUMP_F_SC			219(1)	5.23(4.54)	5.00(0.00,10.00)	0.00-10.00	
								
C7. Gross motor total score	G_MOTOR_SC			220(0)	43.67(17.11)	50.00(35.00,60.00)	0.00-60.00	
								
D1. Draw a vertical line	LINE_V	Missing	2(0.9)					
								
		Not yet	44(20.0)					
								
		Sometimes	46(20.9)					
								
		Yes	128(58.2)					
								
D1a. Draw a vertical line score	LINE_V_SC			218(2)	6.93(4.01)	10.00(5.00,10.00)	0.00-10.00	
								
D2. Thread a shoelace	SHOELACE	Missing	2(0.9)					
								
		Not yet	62(28.2)					
								
		Sometimes	48(21.8)					
								
		Yes	108(49.1)					
								
D2a. Thread a shoelace score	SHOELACE_SC			218(2)	6.06(4.30)	5.00(0.00,10.00)	0.00-10.00	
								
D3. Draw a circle	CIRCLE	Missing	1(0.5)					
								
		Not yet	43(19.5)					
								
		Sometimes	47(21.4)					
								
		Yes	129(58.6)					
								
D3a. Draw a circle score	CIRCLE_SC			219(1)	6.96(3.98)	10.00(5.00,10.00)	0.00-10.00	
								
D4. Draw a horizontal line	LINE_H	Missing	2(0.9)					
								
		Not yet	52(23.6)					
								
		Sometimes	44(20.0)					
								
		Yes	122(55.5)					
								
D4a. Draw a horizontal line score	LINE_H_SC			218(2)	6.61(4.18)	10.00(5.00,10.00)	0.00-10.00	
								
D5. Cut paper	CUT	Missing	3(1.4)					
								
		Not yet	80(36.4)					
								
		Sometimes	32(14.5)					
								
		Yes	105(47.7)					
								
D5a. Cut paper score	CUT_SC			217(3)	5.58(4.59)	5.00(0.00,10.00)	0.00-10.00	
								
D6. Hold a pen	HOLD	Not yet	52(23.6)					
								
		Sometimes	37(16.8)					
								
		Yes	131(59.5)					
								
D6a. Hold a pen score	HOLD_SC			220(0)	6.80(4.20)	10.00(5.00,10.00)	0.00-10.00	
								
D7. Fine motor total score	F_MOTOR_SC			218(2)	39.04(18.51)	45.00(25.00,55.00)	0.00-60.00	
								
E1. Copy or imitate	COPY	Missing	3(1.4)					
								
		Not yet	23(10.5)					
								
		Sometimes	42(19.1)					
								
		Yes	152(69.1)					
								
E1a. Copy or imitate score	COPY_SC			217(3)	7.97(3.37)	10.00(5.00,10.00)	0.00-10.00	
								
E2. Find a chair	FIND	Missing	1(0.5)					
								
		Not yet	26(11.8)					
								
		Sometimes	24(10.9)					
								
		Yes	169(76.8)					
								
E2a. Find a chair score	FIND_SC			219(1)	8.26(3.41)	10.00(10.00,10.00)	0.00-10.00	
								
E3. Describe figure	FIGURE	Missing	4(1.8)					
								
		Not yet	44(20.0)					
								
		Sometimes	22(10.0)					
								
		Yes	150(68.2)					
								
E3a. Describe figure score	FIGURE_SC			216(4)	7.45(4.06)	10.00(5.00,10.00)	0.00-10.00	
								
E4. Repeat two numbers	REPEAT2	Missing	1(0.5)					
								
		Not yet	36(16.4)					
								
		Sometimes	21(9.5)					
								
		Yes	162(73.6)					
								
E4a. Repeat two numbers score	REPEAT2_SC			219(1)	7.88(3.79)	10.00(5.00,10.00)	0.00-10.00	
								
E5. Copy bridge	BRIDGE	Missing	1(0.5)					
								
		Not yet	34(15.5)					
								
		Sometimes	49(22.3)					
								
		Yes	136(61.8)					
								
E5a. Copy bridge score	BRIDGE_SC			219(1)	7.33(3.75)	10.00(5.00,10.00)	0.00-10.00	
								
E6. Repeat three numbers	REPEAT3	Missing	1(0.5)					
								
		Not yet	57(25.9)					
								
		Sometimes	34(15.5)					
								
		Yes	128(58.2)					
								
E6a. Repeat three numbers score	REPEAT3_SC			219(1)	6.62(4.31)	10.00(0.00,10.00)	0.00-10.00	
								
E7. Problem solving total score	PROB_SOLV_SC			218(2)	45.55(16.25)	50.00(40.00,60.00)	0.00-60.00	
								
F1. Use a spoon	SPOON	Not yet	10(4.5)					
								
		Sometimes	33(15.0)					
								
		Yes	177(80.5)					
								
F1a. Use a spoon score	SPOON_SC			220(0)	8.80(2.62)	10.00(10.00,10.00)	0.00-10.00	
								
F2. Push cart around objects	AROUND	Not yet	15(6.8)					
								
		Sometimes	7(3.2)					
								
		Yes	198(90.0)					
								
F2a. Push cart around objects score	AROUND_SC			220(0)	9.16(2.63)	10.00(10.00,10.00)	0.00-10.00	
								
F3. Looking in a mirror	MIRROR	Not yet	21(9.5)					
								
		Sometimes	9(4.1)					
								
		Yes	190(86.4)					
								
F3a. Looking in a mirror score	MIRROR_SC			220(0)	8.84(3.04)	10.00(10.00,10.00)	0.00-10.00	
								
F4. Put on a coat	PUT_ON	Not yet	68(30.9)					
								
		Sometimes	56(25.5)					
								
		Yes	96(43.6)					
								
F4a. Put on a coat score	PUT_ON_SC			220(0)	5.64(4.28)	5.00(0.00,10.00)	0.00-10.00	
								
F5. Answer to question "Are you a girl or a boy"	ANSWER	Missing	1(0.5)					
								
		Not yet	48(21.8)					
								
		Sometimes	13(5.9)					
								
		Yes	158(71.8)					
								
F5a. Answer to question "Are you a girl or a boy" score	ANSWER_SC			219(1)	7.51(4.16)	10.00(5.00,10.00)	0.00-10.00	
								
F6. Take turns by waiting	TAKE_TURN	Not yet	17(7.7)					
								
		Sometimes	93(42.3)					
								
		Yes	110(50.0)					
								
F6a. Take turns by waiting  score	TAKE_TURN_SC			220(0)	7.11(3.16)	7.50(5.00,10.00)	0.00-10.00	
								
F7. Personal-social total score	PERS_SOC_SC			220(0)	47.06(13.57)	50.00(40.00,55.00)	0.00-60.00	
								
G1. Hears well	HEAR	No	2(0.9)					
								
		Yes	218(99.1)					
								
G2. Talks like other children	TALK	Missing	2(0.9)					
								
		No	80(36.4)					
								
		Yes	138(62.7)					
								
G3. Understand what your child says	SAY	Missing	1(0.5)					
								
		No	25(11.4)					
								
		Yes	194(88.2)					
								
G4. Do you think your child walk like others	WALK	Missing	1(0.5)					
								
		No	65(29.5)					
								
		Yes	154(70.0)					
								
G5. History of deafness	HISTORY	Missing	1(0.5)					
								
		No	200(90.9)					
								
		Yes	19(8.6)					
								
G6. Concern about vision	VISION	No	198(90.0)					
								
		Yes	22(10.0)					
								
G7. Medical problems	MED_PROB	Missing	1(0.5)					
								
		No	135(61.4)					
								
		Yes	84(38.2)					
								
G8. Does anything about your child worry you?	WORRY	Missing	1(0.5)					
								
		No	127(57.7)					
								
		Yes	92(41.8)					
								
Form Version	VER_ID	A	64(29.1)					
								
		B	156(70.9)