Variable Label (VAR)	Variable Name	Category	N(%)	N(Missing)	Mean(SD)	Median(Q1,Q3)	Range of Values	
A1. Blind_ID	BLIND_ID			253(0)	470.73(275.08)	464.00(216.00,723.00)	2.00-919.00	
								
A3. Study visit	VISIT	Study visit 7 (4 years)	253(100.0)					
								
A5. Patient gender	GENDER	Female	98(38.7)					
								
		Male	155(61.3)					
								
A6. Form completed with/without assistance	ASSISTANCE	No	14(5.5)					
								
		Yes	239(94.5)					
								
A6a. Form completed without assistance	NOASSIST	Father	17(6.7)					
								
		Mother	214(84.6)					
								
		Other primary caregiver	8(3.2)					
								
		Skipped	14(5.5)					
								
A6b. Form completed with assistance	WITHASSIST	Father	2(0.8)					
								
		Mother	11(4.3)					
								
		Other primary caregiver	1(0.4)					
								
		Skipped	239(94.5)					
								
A6c. Method	WITHASSIS_ME	In-person	4(1.6)					
								
		Phone interview	10(4.0)					
								
		Skipped	239(94.5)					
								
A7. Patient age (years) at instrument completion	PATIENT_AGE_INSTR			253(0)	4.02(0.24)	4.01(3.96,4.06)	0.76-4.71	
								
B1. Three items	THREE_ITEMS	Missing	2(0.8)					
								
		Not yet	29(11.5)					
								
		Sometimes	18(7.1)					
								
		Yes	204(80.6)					
								
B1a. Three items score	T_ITEMS_SC			251(2)	8.49(3.33)	10.00(10.00,10.00)	0.00-10.00	
								
B2a. Hungry	HUNGRY							
								
B2b. Tired	TIRED							
								
B2c. Hungry and tired	HUNG_TIRED	Missing	20(7.9)					
								
		Not yet	22(8.7)					
								
		Sometimes	25(9.9)					
								
		Yes	186(73.5)					
								
B2d. Hungry and tired score	HUN_TIRED_SC			233(20)	8.52(3.16)	10.00(10.00,10.00)	0.00-10.00	
								
B3. Two things	TWO_THINGS	Not yet	43(17.0)					
								
		Sometimes	38(15.0)					
								
		Yes	172(68.0)					
								
B3a. Two thigs score	TWO_THING_SC			253(0)	7.55(3.85)	10.00(5.00,10.00)	0.00-10.00	
								
B4. Ending of words	END_WORDS	Not yet	35(13.8)					
								
		Sometimes	40(15.8)					
								
		Yes	178(70.4)					
								
B4a. Ending words score	END_WORDS_SC			253(0)	7.83(3.62)	10.00(5.00,10.00)	0.00-10.00	
								
B5. Three directions	THREE_DIRECT	Not yet	23(9.1)					
								
		Sometimes	29(11.5)					
								
		Yes	201(79.4)					
								
B5a. Three directions score	THREE_DIR_SC			253(0)	8.52(3.13)	10.00(10.00,10.00)	0.00-10.00	
								
B6. All words	ALL_WORDS	Not yet	41(16.2)					
								
		Sometimes	43(17.0)					
								
		Yes	169(66.8)					
								
B6a. Al words score	ALL_WORDS_SC			253(0)	7.53(3.80)	10.00(5.00,10.00)	0.00-10.00	
								
B7. Communication total score	COMMUN_SC			253(0)	48.35(17.34)	55.00(45.00,60.00)	0.00-60.00	
								
C1. Catch a ball	CATCH_BALL	Not yet	21(8.3)					
								
		Sometimes	62(24.5)					
								
		Yes	170(67.2)					
								
C1a. Catch a ball	CATCH_BAL_SC			253(0)	7.94(3.20)	10.00(5.00,10.00)	0.00-10.00	
								
C2. Climb and slide	CLIMB_SLIDE	Missing	1(0.4)					
								
		Not yet	26(10.3)					
								
		Sometimes	18(7.1)					
								
		Yes	208(82.2)					
								
C2a. Climb and slide score	CLIMB_SLI_SC			252(1)	8.61(3.20)	10.00(10.00,10.00)	0.00-10.00	
								
C3. Overhand	OVERHAND	Not yet	19(7.5)					
								
		Sometimes	28(11.1)					
								
		Yes	206(81.4)					
								
C3a. Overhand score	OVERHAND_SC			253(0)	8.70(2.93)	10.00(10.00,10.00)	0.00-10.00	
								
C4. Balance	BALANCE	Not yet	88(34.8)					
								
		Sometimes	51(20.2)					
								
		Yes	114(45.1)					
								
C4a. Balance score	BALANCE_SC			253(0)	5.51(4.45)	5.00(0.00,10.00)	0.00-10.00	
								
C5. Jumping forward	JUMP	Not yet	70(27.7)					
								
		Sometimes	44(17.4)					
								
		Yes	139(54.9)					
								
C5a. Jumping forward score	JUMP_SC			253(0)	6.36(4.34)	10.00(0.00,10.00)	0.00-10.00	
								
C6. One foot	ONE_FOOT	Not yet	66(26.1)					
								
		Sometimes	72(28.5)					
								
		Yes	115(45.5)					
								
C6a. One foot score	ONE_FOOT_SC			253(0)	5.97(4.12)	5.00(0.00,10.00)	0.00-10.00	
								
C7. Gross motor total score	G_MOTOR_SC			253(0)	43.10(16.29)	45.00(35.00,55.00)	0.00-60.00	
								
D1. Six-piece	SIX_PIECE	Missing	1(0.4)					
								
		Not yet	58(22.9)					
								
		Sometimes	41(16.2)					
								
		Yes	153(60.5)					
								
D1a. Six-piece score	SIX_PIECE_SC			252(1)	6.88(4.18)	10.00(5.00,10.00)	0.00-10.00	
								
D2. Cut paper	CUT_PAPER	Not yet	64(25.3)					
								
		Sometimes	63(24.9)					
								
		Yes	126(49.8)					
								
D2a. Cut paper score	CUT_PAPER_SC			253(0)	6.23(4.16)	5.00(0.00,10.00)	0.00-10.00	
								
D3. Three shapes	THREE_SHAPE	Missing	3(1.2)					
								
		Not yet	67(26.5)					
								
		Sometimes	48(19.0)					
								
		Yes	135(53.4)					
								
D3a. Three shapes score	THREE_SHA_SC			250(3)	6.36(4.29)	10.00(0.00,10.00)	0.00-10.00	
								
D4. Buttons	BUTTONS	Not yet	85(33.6)					
								
		Sometimes	42(16.6)					
								
		Yes	126(49.8)					
								
D4a. Buttons score	BUTTONS_SC			253(0)	5.81(4.50)	5.00(0.00,10.00)	0.00-10.00	
								
D5. Draw	DRAW	Missing	1(0.4)					
								
		Not yet	111(43.9)					
								
		Sometimes	25(9.9)					
								
		Yes	116(45.8)					
								
D5a. Draw score	DRAW_SC			252(1)	5.10(4.75)	5.00(0.00,10.00)	0.00-10.00	
								
D6. Color	COLOR	Missing	1(0.4)					
								
		Not yet	122(48.2)					
								
		Sometimes	80(31.6)					
								
		Yes	50(19.8)					
								
D6a. Color score	COLOR_SC			252(1)	3.57(3.88)	5.00(0.00,5.00)	0.00-10.00	
								
D7. Fine motor total score	F_MOTOR_SC			253(0)	33.97(18.69)	40.00(20.00,50.00)	0.00-60.00	
								
E1. Numbers	NUMBERS	Missing	1(0.4)					
								
		Not yet	35(13.8)					
								
		Sometimes	18(7.1)					
								
		Yes	199(78.7)					
								
E1a. Numbers score	NUMBERS_SC			252(1)	8.25(3.56)	10.00(10.00,10.00)	0.00-10.00	
								
E2. Circle	CIRCLE	Missing	1(0.4)					
								
		Not yet	39(15.4)					
								
		Sometimes	14(5.5)					
								
		Yes	199(78.7)					
								
E2a. Circle score	CIRCLE_SC			252(1)	8.17(3.69)	10.00(10.00,10.00)	0.00-10.00	
								
E3. Directions	DIRECTIONS	Missing	2(0.8)					
								
		Not yet	37(14.6)					
								
		Sometimes	57(22.5)					
								
		Yes	157(62.1)					
								
E3a. Directions score	DIRECTION_SC			251(2)	7.39(3.70)	10.00(5.00,10.00)	0.00-10.00	
								
E4. Five colors	FIVE_COLOR	Missing	2(0.8)					
								
		Not yet	42(16.6)					
								
		Sometimes	35(13.8)					
								
		Yes	174(68.8)					
								
E4a. Five colors score	FIVE_COLO_SC			251(2)	7.63(3.83)	10.00(5.00,10.00)	0.00-10.00	
								
E5. Play-act	PLAY_ACT	Missing	2(0.8)					
								
		Not yet	33(13.0)					
								
		Sometimes	29(11.5)					
								
		Yes	189(74.7)					
								
E5a. Play-act score	PLAY_ACT_SC			251(2)	8.11(3.54)	10.00(10.00,10.00)	0.00-10.00	
								
E6. Count five	COUNT_FIVE	Missing	3(1.2)					
								
		Not yet	34(13.4)					
								
		Sometimes	24(9.5)					
								
		Yes	192(75.9)					
								
E6a. Count five score	COUNT_FIV_SC			250(3)	8.16(3.56)	10.00(10.00,10.00)	0.00-10.00	
								
E7. Problem solving total score	PROB_SOLV_SC			252(1)	47.68(17.28)	55.00(45.00,60.00)	0.00-60.00	
								
F1. Utensils	UTENSILS	Missing	1(0.4)					
								
		Not yet	33(13.0)					
								
		Sometimes	46(18.2)					
								
		Yes	173(68.4)					
								
F1a. Utensils score	UTENSILS_SC			252(1)	7.78(3.57)	10.00(5.00,10.00)	0.00-10.00	
								
F2. Four things	FOUR_THINGS	Missing	5(2.0)					
								
		Not yet	39(15.4)					
								
		Sometimes	20(7.9)					
								
		Yes	189(74.7)					
								
F2b. Four things score	FOUR_THIN_SC			248(5)	8.02(3.73)	10.00(10.00,10.00)	0.00-10.00	
								
F3. Wash	WASH	Missing	1(0.4)					
								
		Not yet	34(13.4)					
								
		Sometimes	43(17.0)					
								
		Yes	175(69.2)					
								
F3a. Wash score	WASH_SC			252(1)	7.80(3.60)	10.00(5.00,10.00)	0.00-10.00	
								
F4. Playmates	PLAYMATE	Missing	1(0.4)					
								
		Not yet	31(12.3)					
								
		Sometimes	23(9.1)					
								
		Yes	198(78.3)					
								
F4a. Playmatesscore	PLAYMATE_SC			252(1)	8.31(3.43)	10.00(10.00,10.00)	0.00-10.00	
								
F5. Brush teeth	BRUSH	Not yet	48(19.0)					
								
		Sometimes	54(21.3)					
								
		Yes	151(59.7)					
								
F5a. Brush teeth score	BRUSH_SC			253(0)	7.04(3.95)	10.00(5.00,10.00)	0.00-10.00	
								
F6. Dress	DRESS	Not yet	33(13.0)					
								
		Sometimes	56(22.1)					
								
		Yes	164(64.8)					
								
F6a. Dress score	DRESS_SC			253(0)	7.59(3.58)	10.00(5.00,10.00)	0.00-10.00	
								
F7. Personal-social total score	PERS_SOC_SC			252(1)	46.52(15.66)	50.00(40.00,60.00)	0.00-60.00	
								
G1. Hears well	HEAR	No	10(4.0)					
								
		Yes	243(96.0)					
								
G2. Talks like other children	TALK	No	74(29.2)					
								
		Yes	179(70.8)					
								
G3. Understand what your child says	SAY	No	22(8.7)					
								
		Yes	231(91.3)					
								
G4. Do you think your child walk like others	WALK	Missing	1(0.4)					
								
		No	82(32.4)					
								
		Yes	170(67.2)					
								
G5. History of deafness	HISTORY	Missing	1(0.4)					
								
		No	234(92.5)					
								
		Yes	18(7.1)					
								
G6. Concern about vision	VISION	Missing	1(0.4)					
								
		No	232(91.7)					
								
		Yes	20(7.9)					
								
G7. Medical problems	MED_PROB	Missing	1(0.4)					
								
		No	178(70.4)					
								
		Yes	74(29.2)					
								
G8. Does anything about your child worry you?	WORRY	Missing	5(2.0)					
								
		No	144(56.9)					
								
		Yes	104(41.1)					
								
Form Version	VER_ID	A	6(2.4)					
								
		B	247(97.6)