Variable Label (VAR)	Variable Name	Category	N(%)	N(Missing)	Mean(SD)	Median(Q1,Q3)	Range of Values	
A1. Blind_ID	BLIND_ID			242(0)	476.76(272.32)	480.00(231.00,715.00)	2.00-919.00	
								
A3. Study visit	VISIT	Study visit 8 (5 years)	242(100.0)					
								
A5. Patient gender	GENDER	Female	95(39.3)					
								
		Male	147(60.7)					
								
A6. Form completed with/without assistance	ASSISTANCE	No	31(12.8)					
								
		Yes	211(87.2)					
								
A6a. Form completed without assistance	NOASSIST	Father	16(6.6)					
								
		Mother	186(76.9)					
								
		Other primary caregiver	9(3.7)					
								
		Skipped	31(12.8)					
								
A6b. Form completed with assistance	WITHASSIST	Father	2(0.8)					
								
		Mother	28(11.6)					
								
		Other primary caregiver	1(0.4)					
								
		Skipped	211(87.2)					
								
A6c. Method	WITHASSIS_ME	In-person	8(3.3)					
								
		Phone interview	23(9.5)					
								
		Skipped	211(87.2)					
								
A7. Patient age (years) at instrument completion	PATIENT_AGE_INSTR			242(0)	5.08(0.14)	5.03(4.99,5.11)	4.91-5.75	
								
B1. Three directions	THREE_DIREC	Missing	3(1.2)					
								
		Not yet	19(7.9)					
								
		Sometimes	23(9.5)					
								
		Yes	197(81.4)					
								
B1a. Three directions score	T_DIREC_SC			239(3)	8.72(2.96)	10.00(10.00,10.00)	0.00-10.00	
								
B2. Four-five words	FOUR_FIVE	Missing	4(1.7)					
								
		Not yet	15(6.2)					
								
		Sometimes	11(4.5)					
								
		Yes	212(87.6)					
								
B2a. Four-five words score	FOUR_FIVE_SC			238(4)	9.14(2.60)	10.00(10.00,10.00)	0.00-10.00	
								
B3. Ending 'ed'	END_ED	Missing	1(0.4)					
								
		Not yet	39(16.1)					
								
		Sometimes	44(18.2)					
								
		Yes	158(65.3)					
								
B3a. Ending 'ed' score	END_ED_SC			241(1)	7.47(3.79)	10.00(5.00,10.00)	0.00-10.00	
								
B4. Compare words	COMPARE	Missing	2(0.8)					
								
		Not yet	63(26.0)					
								
		Sometimes	50(20.7)					
								
		Yes	127(52.5)					
								
B4a. Compare words score	COMPARE_SC			240(2)	6.33(4.25)	10.00(0.00,10.00)	0.00-10.00	
								
B5a. Answer to question	ANSWERS_1							
								
B5b. Answer to question	ANSWERS_2							
								
B5c. Answers	ANSWERS	Missing	7(2.9)					
								
		Not yet	20(8.3)					
								
		Sometimes	19(7.9)					
								
		Yes	196(81.0)					
								
B5d. Answers score	ANSWERS_SC			235(7)	8.74(3.00)	10.00(10.00,10.00)	0.00-10.00	
								
B6. Repeat	REPEAT	Missing	1(0.4)					
								
		Not yet	61(25.2)					
								
		Sometimes	78(32.2)					
								
		Yes	102(42.1)					
								
B6a. Repeat score	REPEAT_SC			241(1)	5.85(4.03)	5.00(0.00,10.00)	0.00-10.00	
								
B7. Communication total score	COMMUN_SC			241(1)	46.27(15.59)	50.00(40.00,60.00)	0.00-60.00	
								
C1. Throw a ball	THROW_BALL	Not yet	12(5.0)					
								
		Sometimes	14(5.8)					
								
		Yes	216(89.3)					
								
C1a. Throw a ball score	THROW_BAL_SC			242(0)	9.21(2.41)	10.00(10.00,10.00)	0.00-10.00	
								
C2. Catch ball	CATCH_BALL	Not yet	13(5.4)					
								
		Sometimes	50(20.7)					
								
		Yes	179(74.0)					
								
C2a. Catch ball score	CATCH_BAL_SC			242(0)	8.43(2.85)	10.00(5.00,10.00)	0.00-10.00	
								
C3. Stand on one foot	ONE_FOOT	Missing	1(0.4)					
								
		Not yet	44(18.2)					
								
		Sometimes	41(16.9)					
								
		Yes	156(64.5)					
								
C3a. Stand on one foot score	ONE_FOOT_SC			241(1)	7.32(3.93)	10.00(5.00,10.00)	0.00-10.00	
								
C4. Balance	TIPTOES	Missing	1(0.4)					
								
		Not yet	37(15.3)					
								
		Sometimes	27(11.2)					
								
		Yes	177(73.1)					
								
C4a. Balance score	TIPTOES_SC			241(1)	7.90(3.72)	10.00(5.00,10.00)	0.00-10.00	
								
C5. Jumping forward	HOP	Not yet	91(37.6)					
								
		Sometimes	61(25.2)					
								
		Yes	90(37.2)					
								
C5a. Jumping forward score	HOP_SC			242(0)	4.98(4.33)	5.00(0.00,10.00)	0.00-10.00	
								
C6. One foot	SKIP	Missing	3(1.2)					
								
		Not yet	107(44.2)					
								
		Sometimes	45(18.6)					
								
		Yes	87(36.0)					
								
C6a. One foot score	SKIP_SC			239(3)	4.58(4.49)	5.00(0.00,10.00)	0.00-10.00	
								
C7. Gross motor total score	G_MOTOR_SC			241(1)	42.51(15.82)	45.00(35.00,55.00)	0.00-60.00	
								
D1. Trace the line	LINE	Missing	3(1.2)					
								
		Not yet	61(25.2)					
								
		Sometimes	80(33.1)					
								
		Yes	98(40.5)					
								
D1a. Trace the line score	LINE_SC			239(3)	5.77(4.01)	5.00(0.00,10.00)	0.00-10.00	
								
D2. Drawing	DRAWING	Missing	3(1.2)					
								
		Not yet	59(24.4)					
								
		Sometimes	52(21.5)					
								
		Yes	128(52.9)					
								
D2a. Drawing score	DRAWING_SC			239(3)	6.44(4.19)	10.00(5.00,10.00)	0.00-10.00	
								
D3. Cut paper	CUT_PAPER	Missing	5(2.1)					
								
		Not yet	40(16.5)					
								
		Sometimes	51(21.1)					
								
		Yes	146(60.3)					
								
D3a. Cut paper score	CUT_PAPER_SC			237(5)	7.24(3.83)	10.00(5.00,10.00)	0.00-10.00	
								
D4. Copying	COPYING	Missing	4(1.7)					
								
		Not yet	74(30.6)					
								
		Sometimes	63(26.0)					
								
		Yes	101(41.7)					
								
D4a. Copying score	COPYING_SC			238(4)	5.57(4.26)	5.00(0.00,10.00)	0.00-10.00	
								
D5. Letters	LETTERS	Missing	2(0.8)					
								
		Not yet	67(27.7)					
								
		Sometimes	41(16.9)					
								
		Yes	132(54.5)					
								
D5a. Letters score	LETTERS_SC			240(2)	6.35(4.36)	10.00(0.00,10.00)	0.00-10.00	
								
D6. Letters of the name	LETTERS_NAME	Missing	4(1.7)					
								
		Not yet	53(21.9)					
								
		Sometimes	42(17.4)					
								
		Yes	143(59.1)					
								
D6a. Letters of the name score	LET_NAME_SC			238(4)	6.89(4.13)	10.00(5.00,10.00)	0.00-10.00	
								
D7. Fine motor total score	F_MOTOR_SC			239(3)	38.42(19.58)	45.00(25.00,55.00)	0.00-60.00	
								
E1. Circles	CIRCLES	Missing	1(0.4)					
								
		Not yet	20(8.3)					
								
		Sometimes	8(3.3)					
								
		Yes	213(88.0)					
								
E1a. Circles score	CIRCLES_SC			241(1)	9.00(2.86)	10.00(10.00,10.00)	0.00-10.00	
								
E2. Colors	COLORS	Not yet	20(8.3)					
								
		Sometimes	10(4.1)					
								
		Yes	212(87.6)					
								
E2a. Colors score	COLORS_SC			242(0)	8.97(2.87)	10.00(10.00,10.00)	0.00-10.00	
								
E3. Counts	COUNTS	Missing	1(0.4)					
								
		Not yet	37(15.3)					
								
		Sometimes	70(28.9)					
								
		Yes	134(55.4)					
								
E3a. Counts score	COUNTS_SC			241(1)	7.01(3.71)	10.00(5.00,10.00)	0.00-10.00	
								
E4a. Comparison 1	OPPOSIT_1							
								
E4b. Comparison 2	OPPOSIT_2							
								
E4c. Comparison 3	OPPOSIT_3							
								
E4d. Comparison 4	OPPOSIT_4							
								
E4f. Comparison	OPPOSIT	Missing	1(0.4)					
								
		Not yet	34(14.0)					
								
		Sometimes	23(9.5)					
								
		Yes	184(76.0)					
								
E4g. Comparison score	OPPOSIT_SC			241(1)	8.11(3.60)	10.00(10.00,10.00)	0.00-10.00	
								
E5. Numbers	NUMBERS	Not yet	36(14.9)					
								
		Sometimes	18(7.4)					
								
		Yes	188(77.7)					
								
E5a. Numbers score	NUMBERS_SC			242(0)	8.14(3.65)	10.00(10.00,10.00)	0.00-10.00	
								
E6. Count five	NAME2	Missing	1(0.4)					
								
		Not yet	46(19.0)					
								
		Sometimes	18(7.4)					
								
		Yes	177(73.1)					
								
E6a. Count five score	NAME_SC			241(1)	7.72(3.98)	10.00(5.00,10.00)	0.00-10.00	
								
E7. Problem solving total score	PROB_SOLV_SC			242(0)	48.92(16.64)	55.00(45.00,60.00)	0.00-60.00	
								
F1. Utensils	UTENSILS	Missing	2(0.8)					
								
		Not yet	27(11.2)					
								
		Sometimes	38(15.7)					
								
		Yes	175(72.3)					
								
F1a. Utensils score	UTENSILS_SC			240(2)	8.08(3.40)	10.00(5.00,10.00)	0.00-10.00	
								
F2. Washing	WASHING	Not yet	21(8.7)					
								
		Sometimes	35(14.5)					
								
		Yes	186(76.9)					
								
F2b. Washing score	WASHING_SC			242(0)	8.41(3.13)	10.00(10.00,10.00)	0.00-10.00	
								
F3. Telling	TELLING	Missing	4(1.7)					
								
		Not yet	25(10.3)					
								
		Sometimes	8(3.3)					
								
		Yes	205(84.7)					
								
F3a. Telling score	TELLING_SC			238(4)	8.78(3.15)	10.00(10.00,10.00)	0.00-10.00	
								
F4. Dressing	DRESSING	Not yet	36(14.9)					
								
		Sometimes	79(32.6)					
								
		Yes	127(52.5)					
								
F3b. Example	TELLING_EX							
								
F4a. Dressing score	DRESSING_SC			242(0)	6.88(3.65)	10.00(5.00,10.00)	0.00-10.00	
								
F5. Toilet	TOILET	Missing	1(0.4)					
								
		Not yet	24(9.9)					
								
		Sometimes	27(11.2)					
								
		Yes	190(78.5)					
								
F5a. Toilet score	TOILET_SC			240(2)	8.44(3.23)	10.00(10.00,10.00)	0.00-10.00	
								
F6. Sharing	SHARING	Missing	1(0.4)					
								
		Not yet	6(2.5)					
								
		Sometimes	68(28.1)					
								
		Yes	167(69.0)					
								
F6a. Sharing score	SHARING_SC			241(1)	8.34(2.61)	10.00(5.00,10.00)	0.00-10.00	
								
F7. Personal-social total score	PERS_SOC_SC			242(0)	48.87(13.77)	55.00(45.00,60.00)	0.00-60.00	
								
G1. Hears well	HEAR	No	12(5.0)					
								
		Yes	230(95.0)					
								
G2. Talks like other children	TALK	Missing	1(0.4)					
								
		No	75(31.0)					
								
		Yes	166(68.6)					
								
G3. Understand what your child says	SAY	No	16(6.6)					
								
		Yes	226(93.4)					
								
G4. Do you think your child walk like others	WALK	Missing	1(0.4)					
								
		No	77(31.8)					
								
		Yes	164(67.8)					
								
G5. History of deafness	HISTORY	Missing	1(0.4)					
								
		No	220(90.9)					
								
		Yes	21(8.7)					
								
G6. Concern about vision	VISION	No	204(84.3)					
								
		Yes	38(15.7)					
								
G7. Medical problems	MED_PROB	Missing	4(1.7)					
								
		No	180(74.4)					
								
		Yes	58(24.0)					
								
G8. Does anything about your child worry you?	WORRY	No	135(55.8)					
								
		Yes	107(44.2)					
								
Form Version	VER_ID	B	242(100.0)