Variable Label (VAR)	Variable Name	Category	N(%)	N(Missing)	Mean(SD)	Median(Q1,Q3)	Range of Values	
A1. Blind_ID	BLIND_ID			294(0)	461.08(274.64)	441.50(211.00,709.00)	2.00-919.00	
								
Visit: pre-Fontan Cath	VISIT	Stage III (FONTAN)	294(100.0)					
								
A4. Patient's age (years) at visit	PATIENT_AGE_VISIT			243(51)	2.88(0.84)	2.83(2.23,3.36)	1.17-6.54	
								
B1. Was a cardiac catheterization performed?	CATH_DONE	No	28(9.5)					
								
		Yes	266(90.5)					
								
B2. Patient's age (years) at cardiac catheterization	PATIENT_AGE_CATH			266(28)	2.70(0.84)	2.67(2.10,3.23)	0.62-6.54	
								
B3. Length	CATH_LENGTH			264(30)	89.10(7.44)	89.00(84.00,94.00)	65.00-125.00	
								
B4. Weight	CATH_WEIGHT			265(29)	12.63(2.13)	12.60(11.10,13.70)	6.70-22.30	
								
B5. BSA	BSA			264(30)	0.55(0.08)	0.55(0.50,0.59)	0.28-1.10	
								
B6. Sedation	SEDATION	General Anesthesia	194(66.0)					
								
		Missing	2(0.7)					
								
		Moderate	70(23.8)					
								
		Skipped	28(9.5)					
								
C1. Are there bilateral SVC?	BILAT_SVC	No	233(79.3)					
								
		Skipped	28(9.5)					
								
		Unknown	6(2.0)					
								
		Yes	27(9.2)					
								
C2. SVC abnormalities	ABNORM_SVC	No	245(83.3)					
								
		Skipped	28(9.5)					
								
		Unknown	10(3.4)					
								
		Yes	11(3.7)					
								
C2a1. SVC stenosis present	SVC_STEN_PR	No	8(2.7)					
								
		Skipped	283(96.3)					
								
		Yes	3(1.0)					
								
C2a2. SVC stenosis origin	SVC_STEN_OR	Acquired	3(1.0)					
								
		Skipped	291(99.0)					
								
C2a3. SVC stenosis side	SVC_STEN_SID	Right	3(1.0)					
								
		Skipped	291(99.0)					
								
C2b1. SVC occlusion present	SVC_OCCL_PR	No	11(3.7)					
								
		Skipped	283(96.3)					
								
C2b2. SVC occlusion origin	SVC_OCCL_OR	Skipped	294(100.0)					
								
C2b3. SVC occlusion side	SVC_OCCL_SID	Skipped	294(100.0)					
								
C2c1. Retro-aortic innominate vein	RAIV_PR	No	11(3.7)					
								
		Skipped	283(96.3)					
								
C2d1. Levoatrial-cardinal vein	LACV_PR	No	10(3.4)					
								
		Skipped	283(96.3)					
								
		Yes	1(0.3)					
								
C2e1. Other	SVC_OTH	No	2(0.7)					
								
		Skipped	283(96.3)					
								
		Yes	9(3.1)					
								
C2e1a. Specify	SVC_SP			()	()	(,)	-	
								
D1. IVC	HEPVEIN_IVC	No	33(11.2)					
								
		Skipped	28(9.5)					
								
		Unknown	130(44.2)					
								
		Yes	103(35.0)					
								
D2. Drainage	HEPVEIN_DRAI	No	34(11.6)					
								
		Skipped	131(44.6)					
								
		Unknown	129(43.9)					
								
D3. IVC abnormalities	ABNORM_IVC	No	174(59.2)					
								
		Skipped	28(9.5)					
								
		Unknown	87(29.6)					
								
		Yes	5(1.7)					
								
D3a1. IVC stenosis present	IVC_STEN_PR	No	5(1.7)					
								
		Skipped	289(98.3)					
								
D3a2. IVC stenosis etiology	IVC_STEN_ET	Skipped	294(100.0)					
								
D3b1. IVC occlusion present	IVC_OCCL_PR	No	5(1.7)					
								
		Skipped	289(98.3)					
								
D3b2. IVC occlusion etiology	IVC_OCCL_ET	Skipped	294(100.0)					
								
D3c1. Cor triatriatum Dexter	CTD_PR	No	5(1.7)					
								
		Skipped	289(98.3)					
								
D3d1. Interrupted IVC	INTER_IVC_PR	No	2(0.7)					
								
		Skipped	289(98.3)					
								
		Yes	3(1.0)					
								
D3e1. Other	ICV_OTH	No	4(1.4)					
								
		Skipped	289(98.3)					
								
		Yes	1(0.3)					
								
D3e1a. Specify	ICV_SP			()	()	(,)	-	
								
E1. Pulmonary artery abnormality	ABNORM_PA	No	185(62.9)					
								
		Skipped	28(9.5)					
								
		Unknown	2(0.7)					
								
		Yes	79(26.9)					
								
E1a. Number of abnormalities	ABNORM_PA_NU			78(216)	1.12(0.36)	1.00(1.00,1.00)	1.00-3.00	
								
E1.1. .Pre-Fontan PA abnormality code	PA_ABN_0			()	()	(,)	-	
								
E1.2. .Pre-Fontan PA abnormality code	PA_ABN_1			()	()	(,)	-	
								
E1.3. .Pre-Fontan PA abnormality code	PA_ABN_2			()	()	(,)	-	
								
E1.1. . Specify other Pre-Fontan PA abnormality	PA_ABN_OTH_0			()	()	(,)	-	
								
E1.2. . Specify other Pre-Fontan PA abnormality	PA_ABN_OTH_1			()	()	(,)	-	
								
E1.3. . Specify other Pre-Fontan PA abnormality	PA_ABN_OTH_2			()	()	(,)	-	
								
F1. Catheterization data obtained in	CATH_IN	Missing	1(0.3)					
								
		Room air	239(81.3)					
								
		Skipped	28(9.5)					
								
		Suppl. oxygen	26(8.8)					
								
F2. Mean right atrial pressure	M_RA_PRES			237(57)	6.91(2.24)	7.00(5.00,8.00)	2.00-13.00	
								
F3. Mean left capillary pressure	M_LAPC_WP			237(57)	7.56(2.41)	7.00(6.00,9.00)	2.00-14.00	
								
F4. Mean left vein pressure	M_PALPV_WP			235(59)	11.31(2.88)	11.00(10.00,13.00)	2.00-22.00	
								
F5. Mean right vein pressure	M_RPARPV_WP			227(67)	11.34(3.07)	11.00(9.00,13.00)	0.00-27.00	
								
F6. Ventricular end pressure	SVE_DP			246(48)	8.37(3.64)	8.00(6.00,10.00)	0.00-45.00	
								
F7. Peak ascending aortic pressure	PAA_AP			228(66)	83.89(12.17)	82.00(75.00,90.00)	58.00-126.00	
								
F8. Peak descending aortic pressure	PAD_AP			254(40)	81.17(13.79)	80.50(72.00,90.00)	43.00-128.00	
								
F9. Mean descending aortic pressure	MD_AP			255(39)	60.05(9.49)	60.00(54.00,65.00)	39.00-95.00	
								
F10. Left pulmonary artery saturation	LPA_SATUR			221(73)	68.62(6.93)	68.00(64.00,73.00)	50.00-87.00	
								
F11. Right pulmonary artery saturation	RPA_SATUR			218(76)	67.00(6.38)	67.00(63.00,71.00)	51.00-88.00	
								
F12. Superior vena cava saturation	SVC_SATUR			245(49)	65.62(6.12)	66.00(62.00,69.00)	49.00-82.00	
								
F13. Pulmonary vein saturation	PV_SATUR			195(99)	96.72(2.61)	97.00(96.00,98.00)	75.00-100.00	
								
F14. Systemic arterial saturation	SA_SATUR			256(38)	84.29(4.20)	85.00(82.00,87.00)	68.00-92.00	
								
F15. Additional comments	ADD_COMENT			()	()	(,)	-	
								
Form Version	VER_ID	A	49(16.7)					
								
		B	242(82.3)					
								
		UNKNOWN	3(1.0)