For Researchers

PHN Scholar Award Recipients

PHN INCLUDE Scholars 2019

INCLUDE: INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE

A Multi-Center Prospective Case Controlled Comparison of Analgesia and Sedation after Cardiac Surgery between Children with Down syndrome and their Non-syndromic Counterparts

Barbara-Jo Achuff, MD, FAAP
Texas Children’s Hospital

The Effect of Congenital Heart Disease on Employment, Neuropsychological Outcomes and Quality of Life in Adults with Down syndrome

Stephanie Gaydos, MD
Medical University of South Carolina

Risk factors and outcomes in adolescent and adults with CHD with Down syndrome undergoing surgery

Sarah Goldberg, MD
Boston Children’s Hospital

Computer Modeling of the Complete Atrioventricular Canal Valve in Down syndrome

Matthew A. Jolley, MD
Children’s Hospital of Philadelphia

Vascular Health and Risk Factors in Children with Down syndrome

Adam Ware, MD
University of Utah Health

Long term survival in Down syndrome and CHD

Lydia Wright, MD
Children’s Healthcare of Atlanta

PHN Scholars 2018

The Impact of a Lower Extremity-Focused Exercise Training Program on Leg Muscle Mass and Functional Health Status in Adolescent Patients with Fontan Physiology: A Pilot Study

Catherine Avitabile, MD
Children’s Hospital of Philadelphia

Socioeconomic Status and Long-term Outcomes in Children with Single Ventricle Heart Disease

Emily M. Bucholz, MD, PhD, MPH
Boston Children’s Hospital

Risk Adjusted Evaluation of Fontan Fenestration

Garick Hill, MD
Prarieland Consortium – Cincinnati Children’s Hospital

Collaborative Learning to Improve Intensive Care Unit Developmental Care in Congenital Heart Disease

Thomas A. Miller, DO
Primary Children’s Hospital/University of Utah

Screening Strategies for Intracranial Aneurysms in Coarctation of the Aorta

Sarah Pickard, MD
Boston Children’s Hospital

Metagenomics Approach to the Evaluation of Kawasaki Disease: A Multicenter Pilot Study

Dongngan Truong, MD, MSCI
Primary Children’s Hospital/University of Utah

PHN Scholars 2014

An Initial Evaluation of MyHeartBaby: A mobile Application to Provide Support Around Feeding and Promote Adjustment in Caregivers with an Infant with Congenital Heart Disease

Brandon Aylward, PhD
Children’s Healthcare of Atlanta, Emory University School of Medicine

Randomized Study of Early Nutritional Delivery on Glucose Control, Insulin Resistance and Systemic Inflammation Following Pediatric Cardiac Surgery

Alejandro Floh, MD
The Hospital for Sick Children, Toronto

Assessment of Practice Variation in Programming of Implantable Cardioverter-Defibrillators in Children and Association with Inappropriate Shocks

David Gamboa, MD
Primary Children’s Hospital, Utah

Building an E-health Platform to Improve Adolescent Transition and Transfer of Care

Keila Lopez, MD
Texas Children’s Hospital / Baylor College of Medicine

Off-label Use of the Melody Valve in the “Native” Right Ventricular Outflow Tract

Mary Hunt Martin, MD
Primary Children’s Hospital, Utah

Fetal Brain Development in Congenital Heart Disease

Caitlin Rollins, MD
Boston Children’s Hospital

PHN Scholars 2013

Costs of Complications During the Norwood Hospitalization

Kimberly McHugh, MD
Medical University of South Carolina

Evaluation of Growth and Puberty in Adolescent and Young Adult Fontan Survivors

Shaji Menon, MBBS, MD
Primary Children’s Hospital

The Clinical Significance of Abnormal Spirometry after the Fontan Procedure

Alexander Opotowsky, MD, MPH
Boston Children’s Hospital

Cognitive Outcomes in Children with Congenital Heart Disease

Matthew Oster, MD, MPH
Children’s Healthcare of Atlanta, Emory University School of Medicine

Engaging Physicians to Improve Prenatal Screening for Heart Defects in Practice

Nelangi Pinto, MD
Primary Children’s Hospital

Real-Time Predictive Physiological Monitoring for Improving Patient Outcomes after Stage I Palliation

Craig Rusin, PhD
Texas Children’s Hospital / Baylor College of Medicine

MRI Assessment of the Impact of Fetal Brain Oxygenation on Brain Development in Congenital Heart Disease

Mike Seed, MD
The Hospital for Sick Children, Toronto