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• What is CHD?

Information For Parents

• Communicating with Schools and Teachers
• Coping with Chronic Illness
• Loss of a Child
• Nutrition and Activity
• Why Include Children in Research?
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Information For Providers

• How to Refer a Patient for a Study
• Is a Clinical Study Right for Your Patient?

Information For Researchers

• Echo Z Scores
• How Studies are Created and Monitored
• Joining the PHN
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Information Teens & Adults

• End of Treatment Options
• Growing Up with CHD
• Healthy Lifestyle & Healthy Heart
• Lifestyle Choices & Risky Behavior
• Living with CHD / Chronic Illness
• Transition to Adult Care
• Why Participate in Research?
• Why Participate in Research?

All Studies

• Collaborative Learning
• Dexmedetomidine
• DO-IT
• Echo Z-Score & Normal Electrocardiogram
• Fontan
• Fontan Follow-Up 2
• Fontan Follow-Up 3
• FUEL/FUEL OLE/FALD/FUEL Perceptions
• Infant Single Ventricle (ISV)
• Kawasaki Disease
• Marfan
• MINDS-ACHD
• Mitral Regurgitation
• Oxandrolone/Oxandrolone Perceptions
• Passive Range of Motion (TEAM 4 Growth) Pilot
• Residual Lesion Score (RLS)
• SAXOPHONE
• Single Ventricle Reconstruction (SVR)
• Single Ventricle Reconstruction Follow-Up 2 (SVR II)
• Single Ventricle Reconstruction Follow-Up 3 (SVR III)
• Udenafil
• Ventricular Volume Variability

News

• Echo Z-Scores
• SVR Extension Newsletter