Current and Upcoming Studies

Current Studies

Below is a list of current PHN studies. Learn about where this research is happening and find out more about how you can get involved. Studies closed to recruitment are conducting data analysis.

DO IT!

(Recruiting)

Ages: 10-19
Condition: Combined Dyslipidemia of Obesity (CDO)
Design: Pitavastatin Trial

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Fontan Follow-Up 3

(Completed Recruiting)

Ages: Participants previously enrolled in the Fontan 1 or Fontan 2 studies
Condition: Health status after Fontan surgery
Design: Observational Study

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FUEL/FUEL OLE/FALD/FUEL Perceptions

(Completed Recruiting)

Ages: Male or females ages 12 to 18 who had Fontan surgery
Condition: How the liver is affected by taking udenafil
Design: Udenafil vs Placebo Trial & Open Label Extension

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MINDS-ACHD

(Recruiting)

Ages: 18-30
Condition: Congenital Heart Disease
Design: Observational Study

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Oxandrolone/Oxandrolone Perceptions

(Recruiting)

Ages: Neonates up to 14 days old who have undergone a Norwood procedure
Condition: Oxandrolone safety and dosage
Design: Dosing Study

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SAXOPHONE

(Recruiting)

Ages: Children between birth and 17 years old with certain types of heart disease
Condition: Apixaban safety and dosage
Design: Apixaban vs Other Blood Thinners

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Single Ventricle Reconstruction Follow-Up 3 (SVR III)

(Completed Recruiting)

Ages: Participants previously enrolled in the SVR I or SVR II studies
Condition: Children with single ventricle heart disease
Design: Observational Study

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Upcoming Studies

Team 4 Growth RCT

The Team 4 Growth RCT will be the first nurse-led clinical trial in the Pediatric Heart Network. It will evaluate whether a program of gentle physical exercise is safe and helps babies to grow after having surgery to repair their hearts.