Current and Upcoming Studies

Current Studies

Below is a list of current PHN studies. Learn about where this research is happening and find out more about how you can get involved. Studies closed to recruitment are conducting data analysis.

CHILD-DS

(Completed Recruiting)

Ages: 5-8
Condition: Down syndrome
Design: Multicenter Observational Trial

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COMPASS

(Recruiting)

Ages: Children < 30 days old
Condition: Congenital heart disease and ductal-dependent pulmonary blood flow
Design: Prospective Multicenter Randomized Interventional Trial

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DO IT!

(Completed Recruiting)

Ages: 10-19
Condition: Combined Dyslipidemia of Obesity (CDO)
Design: Pitavastatin Trial

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Fontan Follow-Up 3

(Completed Recruiting)

Ages: Participants previously enrolled in the Fontan 1 or Fontan 2 studies
Condition: Health status after Fontan surgery
Design: Observational Study

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MINDS-ACHD

(Completed Recruiting)

Ages: 18-30
Condition: Congenital Heart Disease
Design: Observational Study

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Oxandrolone/Oxandrolone Perceptions

(Completed Recruiting)

Ages: Neonates up to 14 days old who have undergone a Norwood procedure
Condition: Oxandrolone safety and dosage
Design: Dosing Study

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SAXOPHONE

(Completed Recruiting)

Ages: Children between birth and 17 years old with certain types of heart disease
Condition: Apixaban safety and dosage
Design: Apixaban vs Other Blood Thinners

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Single Ventricle Reconstruction Follow-Up 3 (SVR III)

(Completed Recruiting)

Ages: Participants previously enrolled in the SVR I or SVR II studies
Condition: Children with single ventricle heart disease
Design: Observational Study

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TEAM 4 Growth RCT

(Recruiting)

Ages: Babies up to 29 days old
Condition: Hypoplastic Left Heart Syndrome and other single right ventricle anomalies
Design: Multicenter Controlled Randomized Trial

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Upcoming Studies

Stay tuned for more information on upcoming PHN studies!