Datasets for
Marfan

Marfan

save_altMarfan Study Public Use Dataset

save_altMarfan Study Protocol

save_altMarfan Study Main Results

Dataset Form Codebook SAS Dataset CSV Dataset
A100 Past Echo Data Marfan Limit Access _a100 Codebook _a100.sas7bdat _a100.csv
A101 Eligibility Marfan Limit Access _a101 Codebook _a101.sas7bdat _a101.csv
A102 Clinical Assessment Marfan Limit Access _a102 Codebook _a102.sas7bdat _a102.csv
A103 Ghent Criteria Marfan Limit Access _a103 Codebook _a103.sas7bdat _a103.csv
A104 Consent Marfan Limit Access _a104 Codebook _a104.sas7bdat _a104.csv
A105 Pre-Randomization Marfan Limit Access _a105 Codebook _a105.sas7bdat _a105.csv
A110 Medical Record Review Marfan Limit Access _a110 Codebook _a110.sas7bdat _a110.csv
A111 Family History Marfan Limit Access _a111 Codebook _a111.sas7bdat _a111.csv
A112 Safety Laboratory Findings Marfan Limit Access _a112 Codebook _a112.sas7bdat _a112.csv
A113 24-Hour ECG Monitor Marfan Limit Access _a113 Codebook _a113.sas7bdat _a113.csv
A114 Follow-Up Visit Marfan Limit Access _a114 Codebook _a114.sas7bdat _a114.csv
A115 Family Update Marfan Limit Access _a115 Codebook _a115.sas7bdat _a115.csv
A116 Adverse Drug Reaction Questionnaire Marfan Limit Access _a116 Codebook _a116.sas7bdat _a116.csv
A117 Missed Quarterly Call Marfan Limit Access _a117 Codebook _a117.sas7bdat _a117.csv
A120 Physician Prescription Marfan Limit Access _a120 Codebook _a120.sas7bdat _a120.csv
A121 Study Drug Initiation Marfan Limit Access _a121 Codebook _a121.sas7bdat _a121.csv
A122 Study Drug Uptitration Cycles Marfan Limit Access _a122 Codebook _a122.sas7bdat _a122.csv
A123 Study Drug Re-Uptitration During Maintenance Phase Marfan Limit Access _a123 Codebook _a123.sas7bdat _a123.csv
A124 Dispensing & Compliance Log Marfan Limit Access _a124 Codebook _a124.sas7bdat _a124.csv
A125 Study Drug Administration Confirmation Marfan Limit Access _a125 Codebook _a125.sas7bdat _a125.csv
A190 Re-Consent Marfan Limit Access _a190 Codebook _a190.sas7bdat _a190.csv
A200 Adverse Event Marfan Limit Access _a200 Codebook _a200.sas7bdat _a200.csv
A202 Adverse Event Adjudication Marfan Limit Access _a202 Codebook _a202.sas7bdat _a202.csv
A210 Study Drug Temporary Stop Marfan Limit Access _a210 Codebook _a210.sas7bdat _a210.csv
A211 Study Drug Restart Marfan Limit Access _a211 Codebook _a211.sas7bdat _a211.csv
A212 Permanent Discontinuation of Study Drug Marfan Limit Access _a212 Codebook _a212.sas7bdat _a212.csv
A214 Subject Transfer Marfan Limit Access _a214 Codebook _a214.sas7bdat _a214.csv
A216 Permanent Withdrawal From Trial Marfan Limit Access _a216 Codebook _a216.sas7bdat _a216.csv
A300 Clinical Assessment at Time of Echocardiography Marfan Limit Access _a300 Codebook _a300.sas7bdat _a300.csv
A302 Echocardiography Core Laboratory (Part 1) Marfan Limit Access _a302 Codebook _a302.sas7bdat _a302.csv
A303 Echocardiography Core Laboratory (Part 2) Aortic Root Dimensions (secondary reader) and Aortic Valve Regugitation Marfan Limit Access _a303 Codebook _a303.sas7bdat _a303.csv
A304 Echocardiography Core Laboratory (Part 3) Aortic Root and Stiffness Measurement by Primary Reader Marfan Limit Access _a304 Codebook _a304.sas7bdat _a304.csv
amfs_randomized Randomization Dataset (no form) Marfan Limit Access amfs_randomized Codebook amfs_randomized.sas7bdat amfs_randomized.csv
created_variables Created Variables (no form) Marfan Limit Access created_variables Codebook created_variables.sas7bdat created_variables.csv
Family_id Family ID (no form) Marfan Limit Access family_id Codebook family_id.sas7bdat family_id.csv
Code Lists
1 Formats.sas7bcat formats (1)
2 Marformats64.sas7bcat marformats64
3 Code List D: Medications CodeListD(Meds)_VerF_02.10.11