Datasets for
Single Ventricle Reconstruction Follow-Up 2 (SVR II)

Dataset Form Codebook SAS Dataset CSV Dataset
R108 Primary Outcome SVR II Limit Access _r108 Codebook _r108.sas7bdat _r108.csv
R110 Screening and Enrollment SVR II Limit Access _r110 Codebook _r110.sas7bdat _r110.csv
R111 Heart Failure Classification SVR II Limit Access _r111 Codebook _r111.sas7bdat _r111.csv
R120 Biorepository Consent Verification SVR II Limit Access _r120 Codebook _r120.sas7bdat _r120.csv
R123 Functional Status IIR Ages 3-6 years (FS IIR) SVR II Limit Access _r123 Codebook _r123.sas7bdat _r123.csv
R124 Vineland - II SVR II Limit Access _r124 Codebook _r124.sas7bdat _r124.csv
R741 Vineland Adaptive Scale – Part I (no form) SVR II Limit Access _r741 Codebook _r741.sas7bdat _r741.csv
R742 Vineland Adaptive Scale – Part II (no form) SVR II Limit Access _r742 Codebook _r742.sas7bdat _r742.csv
R125 Children’s Health Questionnaire (CHQ – PF50) SVR II Limit Access _r125 Codebook _r125.sas7bdat _r125.csv
R126 Impact on Family Questionnaire (3-6 years) SVR II Limit Access _r126 Codebook _r126.sas7bdat _r126.csv
R127 Cardiac Transplant Consent Verification SVR II Limit Access _r127 Codebook _r127.sas7bdat _r127.csv
R130 Stage III Fontan Hospitalization SVR II Limit Access _r130 Codebook _r130.sas7bdat _r130.csv
R13x Prenatal and Obstetric Medical History SVR II Limit Access _r13x Codebook _r13x.sas7bdat _r13x.csv
R13y Sibling Medical History SVR II Limit Access _r13y Codebook _r13y.sas7bdat _r13y.csv
R13z Family Medical History SVR II Limit Access _r13z Codebook _r13z.sas7bdat _r13z.csv
R131 Annual Medical History SVR II Limit Access _r131 Codebook _r131.sas7bdat _r131.csv
R19a Ages and Stages Questionnaire (36 months) SVR II Limit Access _r19a Codebook _r19a.sas7bdat _r19a.csv
R19b Ages and Stages Questionnaire (48 months) SVR II Limit Access _r19b Codebook _r19b.sas7bdat _r19b.csv
R19c Ages and Stages Questionnaire (60 months) SVR II Limit Access _r19c Codebook _r19c.sas7bdat _r19c.csv
R200 Adverse Event SVR II Limit Access _r200 Codebook _r200.sas7bdat _r200.csv
R201 Adverse Event Resolution SVR II Limit Access _r201 Codebook _r201.sas7bdat _r201.csv
R205 Clinical 12 Lead Electrocardiogram SVR II Limit Access _r205 Codebook _r205.sas7bdat _r205.csv
R207 Biorepository Withdrawal SVR II Limit Access _r207 Codebook _r207.sas7bdat _r207.csv
R208 Pre-Fontan Clinical Cardiac Catheterization SVR II Limit Access _r208 Codebook _r208.sas7bdat _r208.csv
R209 Clinical 24 hr Electrocardiogram Pre-Fontan SVR II Limit Access _r209 Codebook _r209.sas7bdat _r209.csv
R21a Pediatric Quality of Life Inventory (2 to 4 years) (PedsQL) SVR II Limit Access _r21a Codebook _r21a.sas7bdat _r21a.csv
R21b Pediatric Quality of Life Inventory (5 to 7 years) (PedsQL) SVR II Limit Access _r21b Codebook _r21b.sas7bdat _r21b.csv
R22a Behavior Assessment System for Children Ages 2 to 5 years (BASC-2) SVR II Limit Access _r22a Codebook _r22a.sas7bdat _r22a.csv
R22b Behavior Assessment System for Children Ages 6 to 11 years (BASC-2) SVR II Limit Access _r22b Codebook _r22b.sas7bdat _r22b.csv
R272 Permanent Withdrawal SVR II Limit Access _r272 Codebook _r272.sas7bdat _r272.csv
R300 Clinical Assessment at Time of Echocardiography SVR II Limit Access _r300 Codebook _r300.sas7bdat _r300.csv
R303 Echocardiography Core Lab – 2D SVR II Limit Access _r303 Codebook _r303.sas7bdat _r303.csv
R304 Local 24 Hour ECG Holter SVR II Limit Access _r304 Codebook _r304.sas7bdat _r304.csv
R305 Holter Monitoring Results SVR II Limit Access _r305 Codebook _r305.sas7bdat _r305.csv
R332 Re-admission Within 30 Days SVR II Limit Access _r332 Codebook _r332.sas7bdat _r332.csv
R333 Biorepository Specimen SVR II Limit Access _r333 Codebook _r333.sas7bdat _r333.csv
ND scores Neurodevelopmental Scores (no form) SVR II Limit Access _NDscores Codebook _NDscores.sas7bdat _NDscores.csv
Code Lists
1 Formats svrfmts_combined
2 Code List B (Surg) CodeListB(Surg)_VerG_2012-0618
3 Code List D (Meds) CodeListD(Meds)_VerF_11
4 Code List F (Cath) CodeListF(Cath)_VerG_10
5 Code List M (Comp) CodeListM(Comp)_VerF_072313